I saw the new rheumy about six weeks ago and it wasn't wonderful. He was very nice and very kind and said I really was just suffering fibro and exercise and anti-depressants would help and that it would be best if I go off all my meds. I said thanks but no thanks, gave a quart of blood and left.
So things have gone worse lately. My hair started to fall out horribly. I've lost half of it over the past month. I'm running low grade fevers again all the time, pain in my face is over the top and now I'm having constant head aches and the facial pain radiates down into my neck and shoulders now. No surprise, I'm exhausted all the time. Fatigue is just crushing me. I've had pain in my face and head for six years now, almost constantly. Maybe I've just become so tired that I can't take it anymore. Or maybe I really do hurt more. Either way, I'm having a very hard time handling the pain at times. I end up moaning and pacing and wishing very much to die. No, I'm not depressed really. If the pain was bearable, I would not consider death a good option. I like being alive. But not like this.
As for the exercise option, about a month ago I got a treadmill and I'm walking at a good pace about 25 minutes a day. Except for the days when I can't even stand it. But probably three or four times a week I walk. It's not doing anything but putting blisters on my little toes. :lol:
Today I finally went to see my gp and told him that I have to have something for breakthrough pain. All I take for pain is Neurontin (600 mg three times a day) and ms contin (30 mg three times a day). He said the rheumy had issued a consult that said it's inappropriate to give me narcotics. That puts my gp in a bad spot. Apparently FDA scrutiny is pretty fierce. Despite all that, he believed me and gave me an RX of oxycontin for break through pain -- no more than one a day.
If a problem comes us, he said, he might have to send me to Swedish hospital in Seattle. And it's possible that he could lose the ability to prescribe for me.
So I want to fire this rheumy so he has no say over my treatment. I can't just stop going to see him, I want off his patient list. How do I go about that? Anybody ever actively take themselves off a doctor's practice?
I'm open to suggestions.
Sunny
So things have gone worse lately. My hair started to fall out horribly. I've lost half of it over the past month. I'm running low grade fevers again all the time, pain in my face is over the top and now I'm having constant head aches and the facial pain radiates down into my neck and shoulders now. No surprise, I'm exhausted all the time. Fatigue is just crushing me. I've had pain in my face and head for six years now, almost constantly. Maybe I've just become so tired that I can't take it anymore. Or maybe I really do hurt more. Either way, I'm having a very hard time handling the pain at times. I end up moaning and pacing and wishing very much to die. No, I'm not depressed really. If the pain was bearable, I would not consider death a good option. I like being alive. But not like this.
As for the exercise option, about a month ago I got a treadmill and I'm walking at a good pace about 25 minutes a day. Except for the days when I can't even stand it. But probably three or four times a week I walk. It's not doing anything but putting blisters on my little toes. :lol:
Today I finally went to see my gp and told him that I have to have something for breakthrough pain. All I take for pain is Neurontin (600 mg three times a day) and ms contin (30 mg three times a day). He said the rheumy had issued a consult that said it's inappropriate to give me narcotics. That puts my gp in a bad spot. Apparently FDA scrutiny is pretty fierce. Despite all that, he believed me and gave me an RX of oxycontin for break through pain -- no more than one a day.
If a problem comes us, he said, he might have to send me to Swedish hospital in Seattle. And it's possible that he could lose the ability to prescribe for me.
So I want to fire this rheumy so he has no say over my treatment. I can't just stop going to see him, I want off his patient list. How do I go about that? Anybody ever actively take themselves off a doctor's practice?
I'm open to suggestions.
Sunny