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Hi Penny
I have never heard of a UK rheumy sending test results to an individual, nor have I ever heard of somebody not having a follow up consultation to get the results and the doctor's conclusions. I'd say the follow ups are about 2 months after the initial consultation.
I think they are usually sent to the person's GP at some point. Even if the conclusion is not enought to diagnose SLE, not seeing the doctor deprives the patient of the opportunity to discuss the situation. It is all very odd to me but we do need at least a good GP for in betweeen appointments or emergencies as the regular appointments at St Thomas' are at long intervals and clearly, getting up to London might even be impossible.

Good Luck
Clare
 
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