Wasn't quite sure where to post this, so plonked it in here...
I've been diagnosed with SCLE but am in the process of trying to get this changed so that I can actually receive treatment that might make me feel like a human - as I've forgotten what that's like!
I've had my initial very expensive private appointment in London, and had lots of tests done. I should add that I knew it would cost loads as my GP refuses point blank to run any 'unnecessary' tests. I go back on Friday to get the results.
Anyway, my question - I know that my bloods will come back negative as they always do. My concern is that this happened with my thyroid, despite feeling really ill it was fine a month before I ended up in hospital with a sky high TSH.
My other problem is that my spine is knackered and like an old woman's and my problems are often put down to chronic pain. Yes, I admit I suffer from this, but I've felt like this before my back problems began. This has a knock-on effect in that when I get poked and prodded I can't initially identify the pain - it just hits me like a tonne of bricks the next day.
Anyway, enough ramble and to the point - anyone else been in similar situation and how did they tackle it and actually get someone to take them seriously and provide treatment?
Thanks
Sammy
I've been diagnosed with SCLE but am in the process of trying to get this changed so that I can actually receive treatment that might make me feel like a human - as I've forgotten what that's like!
I've had my initial very expensive private appointment in London, and had lots of tests done. I should add that I knew it would cost loads as my GP refuses point blank to run any 'unnecessary' tests. I go back on Friday to get the results.
Anyway, my question - I know that my bloods will come back negative as they always do. My concern is that this happened with my thyroid, despite feeling really ill it was fine a month before I ended up in hospital with a sky high TSH.
My other problem is that my spine is knackered and like an old woman's and my problems are often put down to chronic pain. Yes, I admit I suffer from this, but I've felt like this before my back problems began. This has a knock-on effect in that when I get poked and prodded I can't initially identify the pain - it just hits me like a tonne of bricks the next day.
Anyway, enough ramble and to the point - anyone else been in similar situation and how did they tackle it and actually get someone to take them seriously and provide treatment?
Thanks
Sammy