The Lupus Forum banner

1 - 7 of 7 Posts

·
Registered
Joined
·
4 Posts
Discussion Starter · #1 ·
Hi All,

I have been attanding a specialist here in Perth for Autoimmune Disease, question is which one?

After researching Hypothyroidism and Lupus I believe that i exhibit the symptoms of Hypothyroidism - depression, weight gain and difficulty to loose, cold fingers and toes, cracked heels, dry skin, faigue, thin/brittle fingernails, very dry and very itchy skin and the list goes on.

On the other hand I also believe that I may have Lupus, symptoms - swollen glands, highly stressed, depression, hair loss and thinning of hair, butterfly rash on face and fatigue.

After having several blood tests, the doctor says that my Thyroid is normal and he says "you may have a varient of Lupus". What ???? What is a Varient and is that a diagnosis ????

I was once told that I have alot of antibodies around my thyroid, would/could that mask that there maybe a problem with my thyroid?

Does anyone have any suggestions of questions that I could ask when i next attend my appointment?(as I am clueless)

I hope someone can help, as this is frustrating which I'm sure most of you can empathise with.

Cheers
Sally
 

·
Moderator
Joined
·
4,436 Posts
HI Sally.. I became hypothyroid about 8-10 yrs ago, then last year diagnosed with MCTD after five months of joint pain etc.. it sounds as if you need to have some auto immune bloods taken,if you haven't already, it would be good to see if anything is happening there. Start writing down a daily diary and a pain scale (0-10..10 being unbearable pain)... also take any photos of rashes, swollen joints etc, so you have documented evidence of your symptoms.. it also helps get it clear in your mind what is going on!!:) Take all this to your next appointment, I would like to think they have already asked you to do this!! Is the person you are seeing a Rheumatologist? It can take a long time to get a clear diagnosis when lots of things are going on.. keep plodding on though, you will get there.
Claire XX
 

·
Administrator
Joined
·
7,566 Posts
Hi, I echo Claires advice a daily symptom diary with photographic evidence of rashes etc is so useful at docs appts. It helps them to build up a clearer picture of what is happening. Let us know how you get on.

Deb
 

·
Registered
Joined
·
116 Posts
Could it be Sjogren's Syndrome? I have it with the lupus. Dry skin, dry eyes(have tear duct plugs), my teeth have got bad. I use alot of oatmeal lotion and hydroxicine when the itching is unbearable. Hope you feel better.

Stacy
 

·
Registered
Joined
·
7,800 Posts
Hello Sally,

I really don't understand the "variant of lupus" statement. It is either lupus or it isn't. There are different kinds of lupus but they are not "variants".

It could be many things. You could well be hypothyroid AND have lupus (I am, as are many others here). You could also have overlaps between other diseases. Some people have lupus and sjorgens, some lupus and RA, some lupus and APS, some lupus-polymyositis-scleroderma or similar (MCTD)... Auto-immune diseases are simply very complex and clear answers can take a while. What doesn't help when looking for diagnosis is many of the symptoms also overlap.

I was initially told "you definitely don't have lupus" (despite many pretty typical symptoms) and also "you don't have polymyositis, your CPK is high but not high enough" - now I have been diagnosed (and correctly treated for) both! And this is the same rheumy. It's just so complex.

I hope this can encourage you to push for clear answers when you next see the docs. I would straight out ask "what do you mean by a variant of lupus?" "can you put a name to that for me please?"

Katharine
 

·
Registered
Joined
·
788 Posts
Hi, same here.. I have hashimotos as well as lupus. It is difficult to figure out what symptoms goes with which autoimmune disease.. I was told both free T 3 and free T 4 needs to be done as well as your TSH levels AND they should check for antibodies against your thyroid.. if there is it is usually Hashimotos or Graves.. depending on the type of antibody. ALSO my T3 is low but my T4 is normal.. the norm range at my hospital is .93 to which my T4 is exactly .93 now.. I was told that the best range for T3 and T4 is when they rest in the mid range.. GOOD luck finding the right diagnosis and doctors.. I wish you all the best!
 
1 - 7 of 7 Posts
Top