:worried: God help me! That is all I got to say. This is a bad bad flare. Just called my Rheumy but another doctor was on call and all he did was tell me to take 20mgs of extra prednisone tonight and call my Rheumy in the morning.
I had a flare like this after having a nerve biopsy several several years ago and that flare landed me in the hospital with CNS Lupus. Not too mention it took two years for me to actually get out of that one.
This morning I had numbness and tingling all over my body. Arms, legs and my joints feel like they are on fire. Burning sensations and feel very hot to the tough so there is indeed inflamation there going on. Been popping pills all day like candy.
Let's just say an after surgery lupus flare that is attacking my nervous system along with the flare itself. The nerves in my body right now are going balistic! Even getting the parkinson shake in my left arm like I did many years ago.
If I would have known this before that surgery I would have never gone through surgery at all. I know one thing, if I am no better tomorrow or get worse off tonight while my husband is here. It's the ER tonight. But hope I can survive the night and shake this mess off with the meds I am already on. I was down to 5mgs of prednisone too and already took 20 mgs this morning before talking to the doctor. Took another 10mgs right after that. So I guess we shall see what 50mgs does.
He told me to take 20 because I was on 5! Okay! I did that this morning. So then I took another 10 before calling him and now he is telling me to take 20 tonight. Already took my other meds for lupus this morning, afternoon and now we are going on evening.
I'm saying some words right now but surely not placing them on the forum. Following the rules! I hope:hehe: My knees are swollen, my hands are swollen and they very seldom swell. I normally just get the nasty joint pain. Sweats popping off my face. Probably have a fever because I feel like it's one there but can't find my thermometer and I am seeing spots on the walls.
Not a good day. And I was getting so excited about healing up after this surgery and getting out of my house and finally having a half way normal life. Well there goes my thrill! Looks like I'm going to be prisoner in my house again a bit longer than I had hoped for. How depressing. I'm so depressed right now and want to cry. I hate lupus! I really hate it. This disease gets nasty!
I had a flare like this after having a nerve biopsy several several years ago and that flare landed me in the hospital with CNS Lupus. Not too mention it took two years for me to actually get out of that one.
This morning I had numbness and tingling all over my body. Arms, legs and my joints feel like they are on fire. Burning sensations and feel very hot to the tough so there is indeed inflamation there going on. Been popping pills all day like candy.
Let's just say an after surgery lupus flare that is attacking my nervous system along with the flare itself. The nerves in my body right now are going balistic! Even getting the parkinson shake in my left arm like I did many years ago.
If I would have known this before that surgery I would have never gone through surgery at all. I know one thing, if I am no better tomorrow or get worse off tonight while my husband is here. It's the ER tonight. But hope I can survive the night and shake this mess off with the meds I am already on. I was down to 5mgs of prednisone too and already took 20 mgs this morning before talking to the doctor. Took another 10mgs right after that. So I guess we shall see what 50mgs does.
He told me to take 20 because I was on 5! Okay! I did that this morning. So then I took another 10 before calling him and now he is telling me to take 20 tonight. Already took my other meds for lupus this morning, afternoon and now we are going on evening.
I'm saying some words right now but surely not placing them on the forum. Following the rules! I hope:hehe: My knees are swollen, my hands are swollen and they very seldom swell. I normally just get the nasty joint pain. Sweats popping off my face. Probably have a fever because I feel like it's one there but can't find my thermometer and I am seeing spots on the walls.
Not a good day. And I was getting so excited about healing up after this surgery and getting out of my house and finally having a half way normal life. Well there goes my thrill! Looks like I'm going to be prisoner in my house again a bit longer than I had hoped for. How depressing. I'm so depressed right now and want to cry. I hate lupus! I really hate it. This disease gets nasty!
And not helping much with our heatwave. It got to 103 degrees in my area today. That is hot hot! 
