Joined
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70 Posts
Hi,
I expect I know some of you already... I've been sick most of my life and veeerry sick the past 4 years or so. One of my doctors (GP) swore up and down he'd tested done the lupus test on me and it had to be fibro, not lupus... come to find out he apparently never ran them! I also actually looked into lupus for myself and was horrified to see at least three diagnostic criteria lining up with my past/current symptoms and around half or a little over of the "common symptoms" matching me.
So, now my team of docs at a med school/university clinic are telling me that they won't give me any more flexeril and I have to go see a rheum to rule out lupus. Which I understand, I guess. but I 90% feel like if it is something incurable I'd rather just not know. I'm a bit scared getting a diagnosis of anything will make my dream of being a nurse/NP in China impossible.
anyways, I'm not really looking for advice or answers, though my list of symptoms (compiled for the rheum) is in my signature if you want to know my entire medical history (it's ok, I don't want to know yours either, I promise
). I mostly just felt awkward posting around here without clarifying that I don't actually have lupus (or, I guess, don't honestly know if I do or not). I would feel bad if people assumed I was a "legit" member. :lol:
On a lighter note, I love dogs, cake decorating (and cake wrecks!), video games incl. Pandemic II, Hellsing, cross stitch, hula hooping, fanfiction, AMV's, facebook, mineral makeup, Chinese language and culture, black phoenix alchemy labs natural perfume oils, 80's and techno and Nightwish and Enya, roleplaying with my boyfriend, pimping out my mobility aids (lightup scooter wheels and spray paint are the best things since sliced bread!), my huge family, and... ginseng. Yes. Because without it I lie in the bed giving people confused looks with one eye half opened. :rotfl: Did I mention food? Yes, I rather like eating as well... nom.
Anyways, I probably/possibly/hopefully don't belong here. But, there's a very real chance I might, and I'd like to make friends and figure out the board rules while I'm relatively not braindead from a flareup and while I'm still in that outgoing positive mindset of "It's Not Lupus"! You all seem like a lovely group and I'll try hard not to interrupt things much. ^_^
-Rachel
I expect I know some of you already... I've been sick most of my life and veeerry sick the past 4 years or so. One of my doctors (GP) swore up and down he'd tested done the lupus test on me and it had to be fibro, not lupus... come to find out he apparently never ran them! I also actually looked into lupus for myself and was horrified to see at least three diagnostic criteria lining up with my past/current symptoms and around half or a little over of the "common symptoms" matching me.
So, now my team of docs at a med school/university clinic are telling me that they won't give me any more flexeril and I have to go see a rheum to rule out lupus. Which I understand, I guess. but I 90% feel like if it is something incurable I'd rather just not know. I'm a bit scared getting a diagnosis of anything will make my dream of being a nurse/NP in China impossible.
anyways, I'm not really looking for advice or answers, though my list of symptoms (compiled for the rheum) is in my signature if you want to know my entire medical history (it's ok, I don't want to know yours either, I promise
On a lighter note, I love dogs, cake decorating (and cake wrecks!), video games incl. Pandemic II, Hellsing, cross stitch, hula hooping, fanfiction, AMV's, facebook, mineral makeup, Chinese language and culture, black phoenix alchemy labs natural perfume oils, 80's and techno and Nightwish and Enya, roleplaying with my boyfriend, pimping out my mobility aids (lightup scooter wheels and spray paint are the best things since sliced bread!), my huge family, and... ginseng. Yes. Because without it I lie in the bed giving people confused looks with one eye half opened. :rotfl: Did I mention food? Yes, I rather like eating as well... nom.
Anyways, I probably/possibly/hopefully don't belong here. But, there's a very real chance I might, and I'd like to make friends and figure out the board rules while I'm relatively not braindead from a flareup and while I'm still in that outgoing positive mindset of "It's Not Lupus"! You all seem like a lovely group and I'll try hard not to interrupt things much. ^_^
-Rachel