[mindyandy420]

I had my dr's appt today to show my rash/peteichaie whatever it is to him. To keep ev1 up to date check out my thread peteichaie. He said it is ingrown hairs. ???? NO WAY! Since it is almost gone and my pics werent very good it was hard for him to make out. I told him about all my problems and he looks at me like I'm crazy since my bloodwork is all neg. :sad:

I did get the referral to Rhemy....I do hope he will listen.
I feel as if I'm going crazy....
I feel that I have lupus....and I feel that my mom has it if she would only get tested. This summer I am going take pics of her sores that she gets and ask my dr about it.

I'm sorry for the rant...I just wish a dr would listen.

Has anybody had neg after neg bloodwork and was told they were crazy?

Thank you for listening.

 

[BellaElla]

Oh geez. In grown hairs! I seriously doubt it.Petechiae are flat.In grown hairs are raised at least somewhat.
Sorry you had a frustrating experience.:sad:

 

[ALWIN]

Hiya

All that matters for now is that you leave your doctor's problem with him. A lot of doctors have little / no experience with lupus.

The important thing is you have the rheumatologist appointment.

The question is, would you still want the same doctor if you do have lupus? A more informed one, or a least a more open-minded one, will be necessary to work with the rheumatologist.

Why not simply change him now you've got your referral?

It is unlikely you will be able to express yourself appropriately with him under the circumstances.

I have never been told I was crazy, but I have seen a rheumy who was dismissive. I never saw him again. I remember feeling very hurt and frustrated, but I let it all go here and ended up with a stronger resolve to keep trying (after a period of licking my emotional wounds, so to speak).

No doctor or specialist since has been that insensitive or rude to me since, so take heart - and don't let other people's attitudes affect how you feel about yourself.

Keep going. And good luck.

 

[mindyandy420]

Thanks ev1

Thank you for the words of encouragement. I do need it. My dr never flat out said your CRAZY but the look on his face said it all.

He (my PCP) doesnt see any reason to see the Rhumey(sp?). He thinks that the Rhumey will find nothing since he found nothing...such as bloodwork...etc.

I wanted to tell him that I thought lupus was a disease of 1,000 faces...but I didnt. I just want a doctor to be persistant enough to keep checking the blood & etc. All the dr's I have seen so far say I look fine and that there is nothing wrong with me. So from here on out for every strange rash I get I will take pics. I dont get them too bad or often but....?

I should have mentioned my fingernails how they have ridges or long wavy line/ridges...I'm not sure how to discribe.

Thanks for all your info and words of encouragement.

 

[LolaLola]

Hello, It is possible to have negative bloods for years. I did despite being really ill . I was treated long before my bloods became positive. Negative bloods certainly do not mean you are less sick then others!
x Lola

 

[Katharine]

Hi there,

I too went through years of people looking at me as if I were crazy. I have never had positive ana but since my diagnosis other things have shown up.

The rheumy can definitely do tests that the GP would not think of though some GPs do outright tell you that there's nothing wrong with you when there definitely is.

Your rash and any photos will be important and any rheumy worth his salt will look at your hands and fingers as they can tell a lot about disease and general health.

All I can say really is hang in there,
Katharine

 

[helloos]

Just keep being persistant.

That doc sounds like a quack.

I would seem to think since my husband gets ingrown hairs and I have gotten those little red dots you speak of, the difference between the two:

one is flat and the other isn't.

The ingrown hair that my husband gets is always a raised bump showing that there is a hair stuck under it, usually gets infected and red and rather larger than those little dots you are seeing.

Now sometimes shaving legs could produce those little red dots, but there is a little difference there too, usually you can see that little spot of hair in the very middle. These little red dots have no hair in the middle, are as flat as anything, you would not know they were there if you ran your finger across the area and had your eyes closed.

Try to get in with a dermatologist when that rash is present. Perhaps get your appointment now and then when the rash comes they will usually see you right away. Anyway, that is how it is here in the states. Not sure about anywhere else.

 

[mindyandy420]

Thanks

Its very nice to know others care.
Thank you for letting me know that your bloods came out neg too. This gives me some sort of encouragement. I will be persistant. I just hope the rhuemy can find something. Not that I want lupus or anything but some answers would be great.

I think since my PCP doesnt see sores on me & I dont have any positive blood work or organ involement that I'm just fine. Well I dont feel fine.