Hey Mali and ((((((((((hugs)))))))))))
You really are going through it aren't you, ppor thing!
All I can say to those that keep going on and saying "so and so has it and is fine..." is, well, that is great for so and so!! However, from coming here you know that that is not true for everybody and that unfortunately you seem to be among those whose disease is difficult to control.
I really can't comment or give advice on the meds and just hope that your doc is doing everything possible to find a solution.
I remember I used to think my rheumy would think I was mad (and or a hypochondriac) when I kept going back and saying that nothing was really improving...one day I actually said it to her and she just said straight up "that is one idea you have to totally banish and for good! you are not in any way a hypochondriac!!" She was very firm about it and it really did make me feel so much more at ease telling her what wasn't good.
I'm sorry I can't do more, just send lots of strengthening hugs...
:grouphug2:
Katharine
You really are going through it aren't you, ppor thing!
All I can say to those that keep going on and saying "so and so has it and is fine..." is, well, that is great for so and so!! However, from coming here you know that that is not true for everybody and that unfortunately you seem to be among those whose disease is difficult to control.
I really can't comment or give advice on the meds and just hope that your doc is doing everything possible to find a solution.
I remember I used to think my rheumy would think I was mad (and or a hypochondriac) when I kept going back and saying that nothing was really improving...one day I actually said it to her and she just said straight up "that is one idea you have to totally banish and for good! you are not in any way a hypochondriac!!" She was very firm about it and it really did make me feel so much more at ease telling her what wasn't good.
I'm sorry I can't do more, just send lots of strengthening hugs...
:grouphug2:
Katharine