Hey,
I have recently been to the Rheumatologist for a diagnosis of Lupus. I have had nearly all the symptoms for about a year (noticably). My Rheumy said that she was 99% sure I had Lupus before she even ran the blood tests. Then she ran all the blood tests and they all came back fine. However, I just had my spleen removed due to very low platelets (which lupus can cause) and my Hemotologist said hey thought it might be Lupus as well. But since all of my blood work came back ok, My Rheumatologist said she cannot treat me because there is no proof of Lupus even though she still thinks I have it! I cried in the doctors office because of how miserable I feel. I am almost in tears now because I feel horrible. I can't live like this. The extreme fatigue and pain and everything is doing me in.
Does anyone have any suggestions of how I can get some help for this?!
Thanks
I have recently been to the Rheumatologist for a diagnosis of Lupus. I have had nearly all the symptoms for about a year (noticably). My Rheumy said that she was 99% sure I had Lupus before she even ran the blood tests. Then she ran all the blood tests and they all came back fine. However, I just had my spleen removed due to very low platelets (which lupus can cause) and my Hemotologist said hey thought it might be Lupus as well. But since all of my blood work came back ok, My Rheumatologist said she cannot treat me because there is no proof of Lupus even though she still thinks I have it! I cried in the doctors office because of how miserable I feel. I am almost in tears now because I feel horrible. I can't live like this. The extreme fatigue and pain and everything is doing me in.
Does anyone have any suggestions of how I can get some help for this?!
Thanks