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last october we took our 3 year old son to a and e because of a unusual rash on his belly,the doctors noticed lots of bruising that we had excepted as our son is so lively apart from getting a little paranoid over all the questions about brusies we thought we would be told to go home as the rash just looks like melingitus but because he was well we just wanted it ruled out.
to our horror they told us he had leukemi and the rash and brusies was because of it,after they admitted him and run some more test they said it wasnt leukemia it was itp and instead of having 150 to 450 platlets he had 6 just 6 and this was why he had the symptoms.
obviouslly a better out come than leukimia we were still petrified as the doctors explained itp and told us of the risks of spontaniouse brain hemorage etc. he was discharged the next day we had to take him back every few days for blood test his platlets jumped just after xmas from 30 to 242 we were over the moon but gradually eaqch week they have fallen down he is just over 100 at the moment, the reason i am putting this on the lupus site is because one of his doctors said the ecxma i thought he had over his nose and cheeks could be lupus.
the only other symptoms or qwerks are very creamy coloured poo, the rash on his face, leg pains at night and the low platlets. the only other medical problem he has had is allergys as a baby. the hospital thought he had celiac deaseas but decided on lactos intolerance. he seems to have out grown this now,he is due to see the hemotolagist on the 4th feb.
what sort of blood test do you think he should have to rule out lupus, our doctors seem to have tunnel vision with itp at the end and dont seem to listen about his other symptoms.
i have looked on google at pictures of the butterfly rash on the face and my baby has the same but thankfully he is loads of the other symptoms free do you need every symptom to have lupus ? i sure hope our doctors are right and this is itp
to our horror they told us he had leukemi and the rash and brusies was because of it,after they admitted him and run some more test they said it wasnt leukemia it was itp and instead of having 150 to 450 platlets he had 6 just 6 and this was why he had the symptoms.
obviouslly a better out come than leukimia we were still petrified as the doctors explained itp and told us of the risks of spontaniouse brain hemorage etc. he was discharged the next day we had to take him back every few days for blood test his platlets jumped just after xmas from 30 to 242 we were over the moon but gradually eaqch week they have fallen down he is just over 100 at the moment, the reason i am putting this on the lupus site is because one of his doctors said the ecxma i thought he had over his nose and cheeks could be lupus.
the only other symptoms or qwerks are very creamy coloured poo, the rash on his face, leg pains at night and the low platlets. the only other medical problem he has had is allergys as a baby. the hospital thought he had celiac deaseas but decided on lactos intolerance. he seems to have out grown this now,he is due to see the hemotolagist on the 4th feb.
what sort of blood test do you think he should have to rule out lupus, our doctors seem to have tunnel vision with itp at the end and dont seem to listen about his other symptoms.
i have looked on google at pictures of the butterfly rash on the face and my baby has the same but thankfully he is loads of the other symptoms free do you need every symptom to have lupus ? i sure hope our doctors are right and this is itp