[Postie]

Give me your opinions on what you think about this? I don't know at all if this correct--it's just a guess.

Since malar rash spares the nasal folds over the nose and cheek, I see where rosacea doesn't spare the folds.

So I asked my rheumy before if he thought this rash was lupus or rosacea and he studied me face and neck real good and he said it's pointing toward lupus.

So can a malar rash possibly cover the nasal folds?

CindyLou

 

[Postie]

Lily

What does a photosensitivity rash look like? Is that a connective tissue disease rash?

My rheumy said the rash I have is a connective tissue rash.

Does a photosensitivity rash stay the same exact place for years on end? That's what mine is.

CindyLou

 

[Postie]

Lesley

This can sure get confusing about these rashes. No wonder why Rheumy's have a hard time figuring this out.

Does sometimes your malar rash then spare the nasal folds where there's no red?

Mine doesn't change. It always is the same. But I guess if it's a photosensitivity rash, wouldn't the Rheumy know that? Or is that hard to diagnose?

CindyLou

 

[Postie]

Clare

I guess this might be a stupid question on my part but this is so very confusing and I'm just trying to understand all of this.

If I am going to a Rheumy, what is the sense of me going to keep seeing him if I don't really have any answers to a diagnosis. Isn't it just as good if my regular doc just does the bloodwork through the year like what she does?

I guess I don't understand why I need to keep seeing the rheumy once a year. I know people have mentioned that I should already be on meds. If nobody can figure out the rash I have and if the main Lupus test comes up negtive then I'm guessing my opinion is why do I still need to see a rheumy.

I am new to this and it doesn't make any sense?

Any direction in this?

CindyLou