Hi:
I am quite down tonight.
I saw the rhumy today, he has determined that now there is kidney involvement...I have been leaking protien and red blood cells in my urine for the last 10 weeks, 3 Urinalysis all no good. Next step is a 24 hour peepee test to determine the actual quantities and a sonogram to determine the extent of the damage.
My IMg's have continued to rise, now I have to go every 6 weeks for the next 6 months to monitor my blood and determine if I need to go on cumadin or warafin, we are hopeful that this will not be necessary as I would love less meds not more.
I also am having another attack of chostroconditris. So I guess you could say this hasn't been one of my better days.
I do however get to wean off the 5mg of prendisone I have been on. He has determined that it isnt really doing much except maybe make me feel somewhat human, but hey, who needs that??? I am to go to 2.5 mg for 8 weeks then stop.
He also wants me off the HRT as he feels it is contraindicative with whats happening with my Lupus...so now I can forget sanity and sex..WooHoo!!!
OK..sorry all for crying in your pretzles, but no one else can understand the fear and sorrow we go through when things digress instead of improve.
Well deep breath, chest out, chin up, think I'll take my doggie for a nice long walk, it always mekes me happy to see him prancing around with his leash in his mouth.
Love you all, thanks for listening!
I am quite down tonight.
I saw the rhumy today, he has determined that now there is kidney involvement...I have been leaking protien and red blood cells in my urine for the last 10 weeks, 3 Urinalysis all no good. Next step is a 24 hour peepee test to determine the actual quantities and a sonogram to determine the extent of the damage.
My IMg's have continued to rise, now I have to go every 6 weeks for the next 6 months to monitor my blood and determine if I need to go on cumadin or warafin, we are hopeful that this will not be necessary as I would love less meds not more.
I also am having another attack of chostroconditris. So I guess you could say this hasn't been one of my better days.
I do however get to wean off the 5mg of prendisone I have been on. He has determined that it isnt really doing much except maybe make me feel somewhat human, but hey, who needs that??? I am to go to 2.5 mg for 8 weeks then stop.
He also wants me off the HRT as he feels it is contraindicative with whats happening with my Lupus...so now I can forget sanity and sex..WooHoo!!!
OK..sorry all for crying in your pretzles, but no one else can understand the fear and sorrow we go through when things digress instead of improve.
Well deep breath, chest out, chin up, think I'll take my doggie for a nice long walk, it always mekes me happy to see him prancing around with his leash in his mouth.
Love you all, thanks for listening!