hi maia.
i have been ill for 18yrs,dx with m.e. cervical spondylosis, raynauds,severe ashma,with pleuric probs, aches/pain,muscle weakness,neurological probs,eyes unequal,(pupil),flu-like illnesses,chronic rhinitis/sinus,severe itching all over,and many more probs.
i have seen all the relevant specialists over the yrs with no success,including a dermy,about 6yrs ago who said i had the itch/scratch syndrome,basically threw me out put me on antihistamines,said taking them for 2yrs i will be ok.
well 6yrs later i am in a right mess,if i go out in sun,i get so ill,that my skin looks like i have fell in a bush of stinging nettles,rashed/welted all over,i kept thinking i had sun stroke,as i would feel so unwell.
but this has progressed to all year round with endless probs,if i try and take a new meds i react,with severe reactions which are getting more serious,so i am dead scared about taking any meds,in fact it has got so bad i am getting so scared of living,i am on constant antihistamines(high dose)to try and controll it but with no success.
and what i thought was suffering with colds or year round,it turns out to be chronic rhinitis/allergies.
my skin has changed color,i look more darker with lots of red tones especially on face across bridge of nose/cheeks,it has started to look like a butterfly rash,which i have suffered with raised areas on face that dont itch,i have small spots of hardening skin on left hand which is slowly getting bigger(showed doc nothing to worry about)and inside my lip i have a bruised like appearence on inner top lip(showed doc nothing to worry about but will keep an eye on it).
docs are completely lossed as what is wrong other than it being purely just m.e..
blood test have been in range up to the last year or so,but nothing of importance,high raised blood cells mostly saying i drink to much alcohol when in fact i dont touch it as very allergic to the stuff,now they have been comming back low anemia,so all in all very confused about it all.
i have been sent to the rhumy to put me on immunetheraphy to try and controll the allergies as they dont want me to go on suppressants yet,which i agree with what they are saying.
there is so much more going on,this is just the tip of the iceburg,i just want some answers,mostly with the skin as it drives me insane/makes me very unwell.
any ideas mostly welcomed.
many,many thanks jo8