:sad:Good morning,
This is my story (long, sorry!):
For years, I have had different issues, starting back to 1996. After my second child, I started having frequent and very painful migraines. I also had a couple of fainting spells that were dismissed as connected to the migraines. I also had a time where my chest would hurt, and I was told that it was possibly "my muscle pulling away from my chest". Isn't that a problem?? Anyway, I've never been diagnosed with anything other than migraines.
In 1999, I had an episode of unusual swelling that landed me in the hospital for 3 days. They weren't sure if they wanted me in the stroke unit or not. They ran every test they could think of, and nothing. I kept having the swelling episodes on and off for 2 years before I was told I possibly had a-typical migraines (yes, migraines again!), causing my left side to react strangely. I started taking migraine medication when I had problems. Seemed to help, but I don't know, because I slept most of the time.
Fast forward a couple of years. I started having pain in my ankles; every time I woke up, I wasn't able to walk right because of the pain in my Achilles' tendon. Both legs. I didn't see a doctor, because I was tired of seeing doctors. Then I had pains in my hips. I went to the doctor for the hip pain, but didn't tell her about my ankles, because they weren't bothering me at that time. She sent me to a Rheumatologist anyway. When I first went to the office, the rheumatologist started diagnosing me with RA, without a history or a test or x-ray. I thought it was strange, he was telling me what my symptoms were, and didn't listen when I said I didn't have all of the symptoms he was talking about. Anyway, I got the tests, and no RA. No lupus, either. I got frustrated and left it all alone, said I would live with the pain. In May of this year, I started having swollen glands, I passed out at work, had very bad virtigo. Went to the doctor, nothing. I cried. I told my doctor to find me a good psychiatrist, because I'm crazy. She said I'm not crazy, she thinks it's lupus, and we'll find what's wrong.
Right now, I have iritis. This is the third week, but I just started taking drops because I didn't know what it was. I thought it was pink eye. When I went to the opthamologist, he asked the lupus question again. I've never had the "rash", no hair falling out, no mouth sores, no abnormal weight loss. I've had every other symptom, but when I go to the doctor, they say they can't find anything. I don't know what to do!! I know I need to actually continue my follow-up, but I get so frustrated, I think the doctors think I'm crazy, and sometimes I do to...:worried:
I was also told recently that I had reflux - the er doctor didn't touch me, take any samples, or do any x-rays. Just said my chest pain was reflux.
I have another appointment for blood tests, so we'll see.
This is my story (long, sorry!):
For years, I have had different issues, starting back to 1996. After my second child, I started having frequent and very painful migraines. I also had a couple of fainting spells that were dismissed as connected to the migraines. I also had a time where my chest would hurt, and I was told that it was possibly "my muscle pulling away from my chest". Isn't that a problem?? Anyway, I've never been diagnosed with anything other than migraines.
In 1999, I had an episode of unusual swelling that landed me in the hospital for 3 days. They weren't sure if they wanted me in the stroke unit or not. They ran every test they could think of, and nothing. I kept having the swelling episodes on and off for 2 years before I was told I possibly had a-typical migraines (yes, migraines again!), causing my left side to react strangely. I started taking migraine medication when I had problems. Seemed to help, but I don't know, because I slept most of the time.
Fast forward a couple of years. I started having pain in my ankles; every time I woke up, I wasn't able to walk right because of the pain in my Achilles' tendon. Both legs. I didn't see a doctor, because I was tired of seeing doctors. Then I had pains in my hips. I went to the doctor for the hip pain, but didn't tell her about my ankles, because they weren't bothering me at that time. She sent me to a Rheumatologist anyway. When I first went to the office, the rheumatologist started diagnosing me with RA, without a history or a test or x-ray. I thought it was strange, he was telling me what my symptoms were, and didn't listen when I said I didn't have all of the symptoms he was talking about. Anyway, I got the tests, and no RA. No lupus, either. I got frustrated and left it all alone, said I would live with the pain. In May of this year, I started having swollen glands, I passed out at work, had very bad virtigo. Went to the doctor, nothing. I cried. I told my doctor to find me a good psychiatrist, because I'm crazy. She said I'm not crazy, she thinks it's lupus, and we'll find what's wrong.
Right now, I have iritis. This is the third week, but I just started taking drops because I didn't know what it was. I thought it was pink eye. When I went to the opthamologist, he asked the lupus question again. I've never had the "rash", no hair falling out, no mouth sores, no abnormal weight loss. I've had every other symptom, but when I go to the doctor, they say they can't find anything. I don't know what to do!! I know I need to actually continue my follow-up, but I get so frustrated, I think the doctors think I'm crazy, and sometimes I do to...:worried:
I was also told recently that I had reflux - the er doctor didn't touch me, take any samples, or do any x-rays. Just said my chest pain was reflux.
I have another appointment for blood tests, so we'll see.