But I hope they have.
I have not yet been dx'd with Lupus, my PCP and Rheumy think I have it but we are waiting for tests to come back. I hope no one minds if I ask this question. I get the strangest symptom. It usually happens when I am relaxing, when out of the blue it will feel like something tightly clamps one of my finger tips, or a pin has pricked it, or it will itch, or some other strange sensation will occur, no matter that the feeling in my finger tip though, the result is always the same, it is instantly followed by what feels like an invisible punch to my stomach then an invisible palm slap to my forehead (like when you hit your forehead with your own palm when you realize something). I instantly feel sick to my stomach and feel as if I have a stomach and head flu. I also feel dis-oriented. The flu symptoms only last about 5 minutes. The disorientation lasts for hours. I guess it can be called a brain fog. Sometimes this "incident" happens in clusters which can wipe me out for a couple of days. Then it won't occur for weeks.
Does anyone have any ideas?
I am in a situation I have read that so many of you are or have been in, my performance at work has gone from top notch to "are you even paying attention?"
My initial blood test showed blood and protien in the urine
It screened for ANA's but my Rheumy said it wasn't the right test so he is re-doing that as well as several other blood tests - I'll know more on June 23rd.
The standard Lyme test showed negative but I had my PCP do a new one I heard about called CD 57 - it came up negative. 60 to 360 is normal and I was 52. If you read what the scientists who discovered it say though 180 to 360 is normal. Anyway, my rheumy basically said hogwash to the whole Lyme theory. If the test don't show auto-immune, I'll buy my own 4 to 6 week of Doxycyclene and treat myself.
Sorry to go on. I'm a 47 year old male, frustrated, confused, and worried about watching my career as a project manager slip away from me because I can't stay awake and if I do manage to stay awake, I can't remember what I learned the day before.
Thanks for listening.
I have not yet been dx'd with Lupus, my PCP and Rheumy think I have it but we are waiting for tests to come back. I hope no one minds if I ask this question. I get the strangest symptom. It usually happens when I am relaxing, when out of the blue it will feel like something tightly clamps one of my finger tips, or a pin has pricked it, or it will itch, or some other strange sensation will occur, no matter that the feeling in my finger tip though, the result is always the same, it is instantly followed by what feels like an invisible punch to my stomach then an invisible palm slap to my forehead (like when you hit your forehead with your own palm when you realize something). I instantly feel sick to my stomach and feel as if I have a stomach and head flu. I also feel dis-oriented. The flu symptoms only last about 5 minutes. The disorientation lasts for hours. I guess it can be called a brain fog. Sometimes this "incident" happens in clusters which can wipe me out for a couple of days. Then it won't occur for weeks.
Does anyone have any ideas?
I am in a situation I have read that so many of you are or have been in, my performance at work has gone from top notch to "are you even paying attention?"
My initial blood test showed blood and protien in the urine
It screened for ANA's but my Rheumy said it wasn't the right test so he is re-doing that as well as several other blood tests - I'll know more on June 23rd.
The standard Lyme test showed negative but I had my PCP do a new one I heard about called CD 57 - it came up negative. 60 to 360 is normal and I was 52. If you read what the scientists who discovered it say though 180 to 360 is normal. Anyway, my rheumy basically said hogwash to the whole Lyme theory. If the test don't show auto-immune, I'll buy my own 4 to 6 week of Doxycyclene and treat myself.
Sorry to go on. I'm a 47 year old male, frustrated, confused, and worried about watching my career as a project manager slip away from me because I can't stay awake and if I do manage to stay awake, I can't remember what I learned the day before.
Thanks for listening.