Vit D
First, thanks for the responses. Much appreciated. I accidentally said IgG 4 was elevated when I meant IgG 2. IgG 4 was low normal. My Vit D was also extremely low (on supplements). The PTH was high normal. A liver specialist is now looking at my case because my ALT shot way up (>3X normal) after having some invasive procedures. I think whatever is going on it is autoimmune (in family) because it seems that any time anything is done to me everything just goes to ****. My biggest problems are: fatigue, abdominal pain, steatorrhea, scleritis, weight loss (55 lbs now), chest pain, nausea (going over a year now with these issues), fluctuating elevations in LFT's and lipase. I have had two EUS's, MRCP, biopsies in the top and bottom of my small bowel, focussed CT scan of pancreas...apparently all normal. I was expecting a liver biopsy, but they are afraid of risk, feeling that the ANA (while on prednisone) at 1:160 (speckled) and positive ds-DNA at 1:10 may possibly indicate autoimmune, but it's not bad enough yet or something (I wish they could be on my end...getting a bit tired of feeling sick as you can imagine).
Sometimes I just think this is so obviously SLE: Raynauds, that weird fishnet like stuff (livedo reticulitis?), pleurisy, GERD and motility problems, hypercoaguability (on warfarin), little blisters in sun, etc.....but, they just don't want to make that call.
Does the Vit D deficiency (I've had that a long time) and high normal PTH and immunoglobulin abnormalities fit with SLE? I know this pancreatitis thing is rare for SLE, but can happen as initial event. I don't know about liver involvement.
Thanks again for responses and well wishes....
First, thanks for the responses. Much appreciated. I accidentally said IgG 4 was elevated when I meant IgG 2. IgG 4 was low normal. My Vit D was also extremely low (on supplements). The PTH was high normal. A liver specialist is now looking at my case because my ALT shot way up (>3X normal) after having some invasive procedures. I think whatever is going on it is autoimmune (in family) because it seems that any time anything is done to me everything just goes to ****. My biggest problems are: fatigue, abdominal pain, steatorrhea, scleritis, weight loss (55 lbs now), chest pain, nausea (going over a year now with these issues), fluctuating elevations in LFT's and lipase. I have had two EUS's, MRCP, biopsies in the top and bottom of my small bowel, focussed CT scan of pancreas...apparently all normal. I was expecting a liver biopsy, but they are afraid of risk, feeling that the ANA (while on prednisone) at 1:160 (speckled) and positive ds-DNA at 1:10 may possibly indicate autoimmune, but it's not bad enough yet or something (I wish they could be on my end...getting a bit tired of feeling sick as you can imagine).
Sometimes I just think this is so obviously SLE: Raynauds, that weird fishnet like stuff (livedo reticulitis?), pleurisy, GERD and motility problems, hypercoaguability (on warfarin), little blisters in sun, etc.....but, they just don't want to make that call.
Does the Vit D deficiency (I've had that a long time) and high normal PTH and immunoglobulin abnormalities fit with SLE? I know this pancreatitis thing is rare for SLE, but can happen as initial event. I don't know about liver involvement.
Thanks again for responses and well wishes....
