[cmfinnis]

Hi

I'm sorry to hear you're so unwell at the moment and I really hope the docs can get to the bottom of it- and quickly - so that you can start feeling a bit better.

I know whether it's related to your problem or not but I thought I might as well mention it . . . . ...

I've got low IgG and low IgA and have just been diagnosed with CVID - you can find it on the internet. My Immunologist told me that there are well recognised cases of SLE (which I also have) which 'progress' to CVID. He explained it to me in terms of my SLE being so aggressive and working my immune system overtime that now it has decided to go into 'early retirement'. There is no cure as such (like SLE) but the management is long term immunoglobulin replacement therapy which are 3-weekly transfusions. This is because a low level of immunoglobulins can make you susceptible to infections . ....

I hope you get a diagnosis and treatment very soon

best wishes to you

Cathy x

 

[cmfinnis]

Yep - you're quite right -

I have CVID - on that page near to the top of the list as 'common variable immunodeficiency syndrome' and sle. With me my SLE was diagnosed first but I actually had low immunoglobulins before my SLE was diagnosed as well, so who knows which came first.

My immunologist told me that SLE can CAUSE an immunodeficiency - albeit quite rare but it is very possible.

Can you get referrred to a specialist in immunodeficiency? That's what I did . .. . and they do lots of specialist tests and vaccinate you to see how well your immune systems' actually working

Thank you for the link and

Good Luck
Cathy x