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I have written various times the past few months in my quest to find out what is causing my edema and then my flaring since the beginning of January. I had an appointment with a cardiologist this week and of course all my records did not get to him, not sure who to blame for that. I had a echo-cardiogram(sp?) in November so he didn't know why my rheumy wanted me seen. Since the Pulmonologist told me my heart was fine. Blamed my edema on my meds and venous insufficiency. I wonder about the venous insufficiency since my edema improves everytime I am on Prednisone.
I am glad of course that my heart seems fine and my lungs are fine. My kidneys seem to be fine as the urine and bloodwork all come back negative. My joint pain is only some worse so I am quite confused. I really am trying to pace myself but I tire real easily. This afternoon I was all prepared to come to boards after I did a bit of quilting. A bit of quilting was maybe 35 minutes. I found myself so tired I couldn't focus my eyes so off I went. It was dinnertime before I was awake again.
As many times as I have flared over the years I have never dealt with exhaustion this severe that I can't accomplish much on any given day. I have always had to pace myself but never this bad.
Fortunately I see my rheumy on Monday so we will see what the next plan of attack is. I have a feeling I will be referred to another Cardiologist and my rheumy will explain why to me. Hoping for more prednisone but not counting on it knowing my rheumy as I do.
Thanks,
Karen
I am glad of course that my heart seems fine and my lungs are fine. My kidneys seem to be fine as the urine and bloodwork all come back negative. My joint pain is only some worse so I am quite confused. I really am trying to pace myself but I tire real easily. This afternoon I was all prepared to come to boards after I did a bit of quilting. A bit of quilting was maybe 35 minutes. I found myself so tired I couldn't focus my eyes so off I went. It was dinnertime before I was awake again.
As many times as I have flared over the years I have never dealt with exhaustion this severe that I can't accomplish much on any given day. I have always had to pace myself but never this bad.
Fortunately I see my rheumy on Monday so we will see what the next plan of attack is. I have a feeling I will be referred to another Cardiologist and my rheumy will explain why to me. Hoping for more prednisone but not counting on it knowing my rheumy as I do.
Thanks,
Karen