I hate to admit it because I don't want to seem weak but I'm really not coping with having SLE. I feel like I can't face anything..I am having so much time off work because when I wake up in the morning the day just seems like this massive impossible marathon. I never know how I'm going to feel and I worry about it constantly. I get so nervous when I go out with friends that I barely go out anymore because of the fear of feeling ill and needing to go home. Loads of my friends live in London and I would love to go and visit them and go out in the evenings there but I just know I couldnt do it because I can't go home when I start feeling crap. I hate meeting new people because its so embarrassing when I'm ill and have to explain my condition to them..especially as no one has a clue what it is.
I'm tearful and angry all the time and last night I just broke down to my boyfriend and told him I don't know how to cope. And although he was totally understanding I feel so weak now I have showed him that. And I feel like I can't talk to my Rheumy or GP about it because I don't want them to start thinking that my symptoms are caused by the way I'm feeling-because its the other way round. I feel like this because I'm struggling.
Sorry about massive rant...does anyone know what I can do or how to cope?
Thanks guys xx
I'm tearful and angry all the time and last night I just broke down to my boyfriend and told him I don't know how to cope. And although he was totally understanding I feel so weak now I have showed him that. And I feel like I can't talk to my Rheumy or GP about it because I don't want them to start thinking that my symptoms are caused by the way I'm feeling-because its the other way round. I feel like this because I'm struggling.
Sorry about massive rant...does anyone know what I can do or how to cope?
Thanks guys xx