I really don't like to self-diagnose but I thought I'd make a post here as I have a few questions about the symptoms I'm having. I had a look online (fatal in the avoiding-self-diagnosis process, I know) and some of my symptoms do seem to correspond with lupus. Like I say though, I don't know if I do have it or not. It could be anything, really. But I'm scared and confused about what I'm experiencing right now and it'd be so helpful if I could get some feedback.
I went to the doctors the other day because the lymph nodes in my groin had been swollen for months. I would've gone sooner but I didn't even realise they were my lymph nodes. Because I'm very thin I thought it was just muscles or part of my anatomy or something- I can often feel lumps in my body. But I happened to stumble across something online about lymph nodes and realised that this is what it was and that it really wasn't normal for them to be swollen for months at a time. The doctor examined me and said that the lymph nodes in my neck were also swollen. He weighed me and it looks like I've lost quite a bit of weight as well. My liver and spleen aren't swollen. I've been booked in for a blood test and am just going to have to wait on the results of that.
Other very vague symptoms that I have are fatigue (I'm ALWAYS tired) and pain/weakness/stiffness in my hands, wrists, fingers and neck. I'm not sure whether its more muscle pain than joint pain or a combination of both. Perhaps even bone pain. I really don't know. This pain thing seems to come and go though.
I also have symptoms that I'm even sure are even related to lupus- bloating/swelling in my lower abdomen, intermittent/fleeting pain in my lower abdomen (particularly on one side) and diarrhea. Although I've also gone through periods of constipation. I went to my doctor about all that a few months ago and he diagnosed me with IBS.
The thing that really caught my attention about lupus though is the sun-sensitivity thing. For a couple of years now I have had that pain in my wrists and hands (sometimes extremely intense) when it gets to the summer. I hadn't even noticed the link before. Last year wasn't so bad (it was a rubbish summer though) but the year before that it was very intense. And since the weather's been good so far this year, I've noticed the pain/weakness/stiffness starting up again. Is it possible to have lupus and not even know about it for that length of time? If I've had a 'flare up' in the past, could I have had it without knowing about it?
Obviously, I don't know what's going on with my body and I'm just going to have to wait on the blood test. I'm pretty scared that the swollen lymph nodes combined with the other symtoms means it could be cancer. But I'm just trying to get as much info as I can about all the possibilities.
I feel like such an idiot always going to my doctor with these vague symptoms. I feel like a complete drain on NHS resources. When I go to the doctors I tend to focus in on a few symptoms that are bothering me the most because I feel silly coming out with this long list of seemingly unrelated symptoms. So my other question is, how do you get across what you've been experiencing symptoms-wise when it is so vague, varied, confusing and possibly unrelated?
Sorry the post is so long!
I went to the doctors the other day because the lymph nodes in my groin had been swollen for months. I would've gone sooner but I didn't even realise they were my lymph nodes. Because I'm very thin I thought it was just muscles or part of my anatomy or something- I can often feel lumps in my body. But I happened to stumble across something online about lymph nodes and realised that this is what it was and that it really wasn't normal for them to be swollen for months at a time. The doctor examined me and said that the lymph nodes in my neck were also swollen. He weighed me and it looks like I've lost quite a bit of weight as well. My liver and spleen aren't swollen. I've been booked in for a blood test and am just going to have to wait on the results of that.
Other very vague symptoms that I have are fatigue (I'm ALWAYS tired) and pain/weakness/stiffness in my hands, wrists, fingers and neck. I'm not sure whether its more muscle pain than joint pain or a combination of both. Perhaps even bone pain. I really don't know. This pain thing seems to come and go though.
I also have symptoms that I'm even sure are even related to lupus- bloating/swelling in my lower abdomen, intermittent/fleeting pain in my lower abdomen (particularly on one side) and diarrhea. Although I've also gone through periods of constipation. I went to my doctor about all that a few months ago and he diagnosed me with IBS.
The thing that really caught my attention about lupus though is the sun-sensitivity thing. For a couple of years now I have had that pain in my wrists and hands (sometimes extremely intense) when it gets to the summer. I hadn't even noticed the link before. Last year wasn't so bad (it was a rubbish summer though) but the year before that it was very intense. And since the weather's been good so far this year, I've noticed the pain/weakness/stiffness starting up again. Is it possible to have lupus and not even know about it for that length of time? If I've had a 'flare up' in the past, could I have had it without knowing about it?
Obviously, I don't know what's going on with my body and I'm just going to have to wait on the blood test. I'm pretty scared that the swollen lymph nodes combined with the other symtoms means it could be cancer. But I'm just trying to get as much info as I can about all the possibilities.
I feel like such an idiot always going to my doctor with these vague symptoms. I feel like a complete drain on NHS resources. When I go to the doctors I tend to focus in on a few symptoms that are bothering me the most because I feel silly coming out with this long list of seemingly unrelated symptoms. So my other question is, how do you get across what you've been experiencing symptoms-wise when it is so vague, varied, confusing and possibly unrelated?
Sorry the post is so long!