Hi there
May I just have a little weep on here? It is so good to hear from people who are in the same boat. Most of the time I manage to feel on top of my lupus, but having just got out of one flare I'm suddenly in another one and am just feeling so awful. I'm having to make all these complex plans to get my two children (2 and 4) to school and pre-school, and it took me 30 minutes to get them downstairs this morning to give them breakfast as I literally had to lie down after every few steps. I feel so bad that they have to see me like this, help me to lift the milk carton because it hurts too much. My husband is lovely but really busy, thank god for friends but it's hard to talk to them about what it's really like. I'm so scared that my health is suddenly deteriorating - I've just become photosensitive, it seems - and that this is what it's going to be like. I just can't see how I can cope with daily life if I'm this bad. I normally manage to do so much and live a full life as long as I rest and take my plaquenil and celebrex. I'm hoping that this is just a blip, that all will be fine again, but sometimes I can't be all positive and jolly and it's all just too much, I am scared and it hurts so much. No one really understands and I can't really be honest with them because it sounds a bit over dramatic and depressing.
It will pass, won't it? And I'm not the only one who gets scared by it all, am I? Sorry for rant but I do feel better already...
xHatty
May I just have a little weep on here? It is so good to hear from people who are in the same boat. Most of the time I manage to feel on top of my lupus, but having just got out of one flare I'm suddenly in another one and am just feeling so awful. I'm having to make all these complex plans to get my two children (2 and 4) to school and pre-school, and it took me 30 minutes to get them downstairs this morning to give them breakfast as I literally had to lie down after every few steps. I feel so bad that they have to see me like this, help me to lift the milk carton because it hurts too much. My husband is lovely but really busy, thank god for friends but it's hard to talk to them about what it's really like. I'm so scared that my health is suddenly deteriorating - I've just become photosensitive, it seems - and that this is what it's going to be like. I just can't see how I can cope with daily life if I'm this bad. I normally manage to do so much and live a full life as long as I rest and take my plaquenil and celebrex. I'm hoping that this is just a blip, that all will be fine again, but sometimes I can't be all positive and jolly and it's all just too much, I am scared and it hurts so much. No one really understands and I can't really be honest with them because it sounds a bit over dramatic and depressing.
It will pass, won't it? And I'm not the only one who gets scared by it all, am I? Sorry for rant but I do feel better already...
xHatty