Thanks Maia. So with the sedimentaion and the rhuematoid factor being fine, it doesn't mean that I am fine and I'm crazy? Here is what I posted a while back:
Hi y'all, I am new to this board and I am looking forward to meeting everyone on here. My name is Robin and I am 33 years old. I am a mother to 4 beautiful kids. I am getting really frustrated not knowing what is going on with me. I have had 3 ana tests done with 2 of them being positive. I think they were 1:80. They also mentioned something about a speckled pattern. The first time I had ever heard anything about lupus was when I was admitted to the hospital with severe hot/cold chills, fever, numb from the waist down and feeling really sick to my stomach. After hours of being there they told me that something was wrong with my liver(sorry but my memory is horrible-don't remember exactly what they told me) and they had to do more testing. They finally told me I had a severe viral infection. I was finally able to go home a week later. Since then I have had problems. I have bad headaches, pain in my right eye, tons of joint pain, memory problems, extreme fatigue, little red spots(size of a pin head that have come pretty rapidly), reddish/purple spots(look like little blood vessels) all over my entire body including face, muscle spasms, cramps and burning in my legs, having trouble swallowing and sometimes talking, numbness and tingling in hands, fingers, legs and feet, hives, lower stomach pain, loss of strength in hands, arms and legs, sleep problems, dry mouth and eyes, sores in nose and mouth, itchy bumps on scalp, hair loss, swelling in hands, legs, stomach and feet, white fingernails with pink lines at the top, red splotchy palms, darker fingertips, rash on legs and I have had pneumonia 5 times. I know I have more wrong with me but my mind has gone blank. At times I am in soooo much pain I can't even walk. Does it sound like lupus? I had a appt. with a rheumatologist but had to cancel since I don't have insurance. They wanted anywhere from $280 to $410 for 1 appt. My hubby is the only one that works since I don't have the energy to.
None of that has changed. Now I sometimes feel like my foot is wet and it's not. My face and lip goes numb. I keep getting staph infections,bacterial vaginitis(sorry), something bacterial/yeast going on in my mouth. Headaches with neck stiffness, I was recently rushed in an ambulance thinking I was having a heart attack but after hours of being there and needles being poked everywhere they said it was a virus on the lining of my lung(no clue what that meant). Oh, and horrible diarrhea that can last a week at a time(sorry for that one as well).
I know that there is something wrong and I'm tired of people acting like theres not. The dr is making an appt with the rheumy. She said they will get back with me in a day or two. The only problem is I can't afford it but I know I need to go this time. No insurance sux! The only thing they gave me besides antibiotics is Mobic/meloxicam. So I guess I wait and see!