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Discussion Starter · #1 ·
I know I shouldn't panic but i can't help it: it's just the way I am at the moment.

Hubby has just phoned me from home to say I have received a letter from my GP, asking me to have a repeat blood test (doesn't say what). I had a rheumy appointment two weeks ago and they took an armful of blood. I can't ring the GP as the surgery closes for lunch.

So just a bit nervous about it. Highly illogical I know as if it was that urgent they would have phoned me. I think that my clotting factors have gone wacko as the livedo is much more pronounced. I am at work and not in a position to have a chinwag with anyone.

Sorry to burden you all but you all are much closer to me in many respects.

Love Judi xx
 

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Hi Judi,

Your panic is certainly understood..even if you think its unwarranted. I agree with you that if it was a major emergency, they would not have relied on the postal service and would have rang you right away.

Sending you (((good vibes))) until you can get some further answers, and I hope that is soon!!!

And please know you are never a burden..we are all here to support each other.

Take care and keep us posted,
Sharon
 

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Hello Judi and hugs :hug: to you,

You're not burdening us at all and I know how worrying such things can be. As you say, it's probably nothing to worry about but we do don't we?

It's like when you get something registered in the post and you have to go down to the post office for it, you're always sat there wondering what it is? Did I forget to pay a bill? or something like that. I think it's just a case of not knowing really...

I'm probably not making much sense but still...
I hope yu can ring the GP soon and put your mind at rest,

hugs,
Katharine
 

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Hi judif as you said if it was urgent they would have phoned you.If it like our doctors if it is not urgent they send a letter second post but if it is something that they need to see you about they phone so try and not worry harder to say than done but i wish you well with what ever it is let us know Best Wishes:) :) elisabeth
 

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Hi Judif,

I totaly agree with everyone else!

The surgery should be open now - phone them and find out what's going on!

Take care,

Love Lesley
 

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Discussion Starter · #6 ·
Thank you ladies. I feel better knowing you are "out there". I'll let you know when I have got through to the surgery (they don't reopen until 14:30.)

xx
 

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Hi judi

It's understandable that you are worried,weve all been there :)

This happened to me on one occasion years ago,their reason for the repeat was that the blood sample wasn't adequate?..goodness knows why it wasn't,at the time I wondered if they had lost it :rolleyes:

I hope you can get in touch with your gp soon judi..please let us know how you get on.

and you are most certainly not burdening us judi,I learn more on here than I have ever done from my rheumy,gp etc
what would we all do without each other :grhug:
good luck..karen x
 

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hey thats what we are here for..

and to hopefullye ase your mind this has happened to me ..first time they simply hadnt taken enough blood..
and the 2nd time a test was out of range so rechecked it and it was fine..

but as the others have said ring now and put your mind at rest.
 

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Discussion Starter · #9 ·
Hello again

Eventually got through to surgery and receptionist was most curt and said get in touch with rheumy...duh. So I phoned her secretary and from my file it looks as if there was insufficient blood for one of the tests. I asked if she could give me the results of the others but she couldn't give them over the phone but she was going to fax them to the GP. The long and the short of it I am having the test done on Friday when hubby has to see the nurse (so they can fit me in with him). Taking hubby to the doc tomorrow so I will ask to see the results and see which test was not done.

So, not such a panic but I could have done without the receptionist's attitude. She was not helpful. At least her colleague, when I rang back after speaking to the rheumy's secy, was more obliging and human!!!

I'm not coping with stress very well at the moment. My husband's illness is distracting me from mine, presently, but any more burdens I fear I'm going to explode.

Thanks for being there.

Love Judi xx
 

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pleased you feel a bit happier now...
 

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Judi, so clad that all turned out nicely. A lot of times it is nothing earth-shattering, but we jump to the worst possible conclusion anyway. I think part of being a lupie is being a worrywart. But,
please try to de-stress judi, as stress=pain. Stay in touch.
 

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Discussion Starter · #12 ·
Hi Girls

I'm sitting here with my rest results and I don't know what to think. All the lupus panel has come back with NA. My last two lupus anticoagulant tests were positive but thisone is NA. The only ones of note were

WBC 3.94
Neutrophils 2.13
Lymphocytes 1.27
Eosophils 0.12
ESR +35
CRP +9
Bilirubin 6
Albumin 45
RF +20

What is GFR (it was 64)?

There was no sample for cardiolipins, so I am having that done tomorrow.

Should I ask for a repeat on the LA and clotting panel?

Should I persist with another ANA?

When I had these done I felt "well". Today I hurt and I am swollen up.

I don't know what to feel. I thought something might show up to confim lupus. Apart from the low white cell count and low neutrophils, the bilirubin elevation may show liver problems. (No, it's not booze, I have about one glass of wine in three months).

Any help would be appreciated.

Love Judi xx
 

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Hi Judif,

I only joined today and have just been following your problems posted today.
Firstly I noticed that you live just up the road from me.
Secondly, I fully understand what it is like to worry. I was only diagnosed with MCTD and SLE January this year. Until then I had to keep going back for different blood tests and was bounced from one diagnosis to another. Eventually I thought I was going mad and that all my symptoms were in my mind - despite some blood results being abnormal.
What I am trying to say - and making a total hash of it - is that worrying about the unknown is quite normal as (in my opinion) it is because it is something that has happened that you cannot control. Being out of control is something I find very scary!!!

It is always best to share your worries and concerns as ' a problem shared is a problem halved'!! So keep shaing and keep smiling:) :)
 

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Discussion Starter · #14 ·
Hi Beanbag
Where in Sussex are you? I'm new to the area and still finding my way around. My last rheumy in Worcester was ALMOST close to a dx and now the Pembury lab have given me this report. I feel so deflated. It's taken 6 years to get this far and I don't know if I have the strength to fight any more.
I will try and get a copy of the consultant's letter to my GP tomorrow.

I so want it to be OVER so I can get some decent treatment.
 

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GFR stands for Glomular Filtration Rate (spelling wrong I think though at this late hour! *lol*) It is a meaure of kidney functioning; ideally for healthy middle age or younger adults it should be above 90. When it falls below 60, it is considered abnormal but being in the mid 60s is not really good. You may want to ask your doctor about it.

ESR and CRP are definitely too high, especially for feeling relatively well. RF must mean rheumatoid factor and appears to be elevated for your lab if there was a + by it.

There is definitely evidence of something going on here... it does sound like time for some truly effective treatment. Good luck at your next appointment.
 

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Discussion Starter · #16 ·
Thanks Maia. I've had two kidney infections in the last four months and I apart from a bout when I was at uni (28 years ago) I have never had any kidney/waterworks problems up until now. Perhaps something is going on there.

I've just got back from the practice nurse who on the instruction from the rhuemy I have had an entire clotting panel and cardiolipin panel repeated. The nurse threw in ESR for good measure as I was giving generously this morning. (Ususally I don't give up my precious blood very easily!!!).

Feeling more hopeful as the rheumy has asked for these repeats. Just aquestion of waiting now.

Hope you are doinf well today.

Love Judi xx
 

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Hi Judif,

It took years before I finally got a diagnosis Jan this year from St Thomas Lupus Centre in London. I am under rheumy at Hastings. I actually live about a 10 min drive from you, just the otherside of the Kent Sussex boarder, near Rye. Getting a diagnosis was the starting point of trying to get my life back together as it seems to have been on hold for so long. Hopefully Pembury will get you sorted and refer you to a specialist centre, such as St Thomas' Hospital. It is frustrating having to wait and you do feel like you are being pushed from pillar to post but remember that you are not alone and talking with others that have/are in the same position helps alot. Take care

Beanbag:rotfl: :lol:
 
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