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went to dr. on tues, they sent me to hospital right away. I have a severe rash on face & arms & head, have had fever of 103 daily for 6 weeks, have been throwing up constant & lost 20 lbs in 2 weeks, sever diarhea, and now we found out that my kidneys are shuttin down again. does this ever end? just frustrated with it all. seems like you do what you can to make things go away & they get worse.
 

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Dear Erenae :sad: :hugbetter: :hugbetter:

I am so sorry to hear you are so poorly and in hospital. What a terrible worry for you. You havent been well since you started the Metho if I remember correctly?

I hope they can sort things out for you as quick as possible. We will be thinking of you Erenae. Please let us know how you are doing.

Hang in there dear girl. We are all rooting for you :hug:

Luv n stuff
Joan:rose:
 

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Hello Erin,

Sorry to hear you are so ill right now. Hopefully the doctors can get things turned around. My thoughts will be with you.

Take care,
Lazylegs
 

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Hello Erin,

I am so sorry you are in the hospital, and that you are not well... I hope they get you started on a treatment right away and that you feel well real soon... My thoughts and prayers will be with you... Take care..

Love Penny
 

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Discussion Starter #5
thank you for your caring. Yes, you are right, it has been since starting the metho that I've been so sick. I asked them about it to see if that is what was making me sick & of course they said no, just a bad flare. I just started iv plasma treatments about an hour ago. they have to get my inr level to 1.5 so they can do the kidney biopsy tomorrow. I'm sure it could be worse, but just seems like it's always something and it gets so frustrating that I have been pretty much crying all day. they said that my esr is 109 still. but lots of drs don't understand that I could use the pain meds here either. one main one i have said just ask, if you need it you need it. the others say well we started prednisone 2 days ago, you shouldn't need it anymore. i don't know. if I'm here & they will give it to me & I need it I'm taking it!! does help me sleep too anyways!! I actually thought before I came in here that I felt like I was going to die, that's how bad things were, so I should be happy I'm here & getting better, but it is so hard to be in the hospital or sick for that matter, isn't it??!!!!! anyways, thanks, it helps to read friendly words from you guys!!
 

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(((Erin)))

I am sorry that you are feeling so rough.:hug:

I sure hope you can get some pain meds. Being in pain is no fun.
I know how frustrating it can be with having lupus. It seems when it rains it pours. :(
I will be thinking of you tomorrow. Sending positive thoughts and prayers your way.

Love,
Lyn
 

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Hi Erin

I am so sorry to hear you are in the hospital right now((((hugs)))).i sure hope and pray that they get things figured out so they can get you feeling better real soon.Please keep us posted on how you are doing.

Tammy
 

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Hi Erin :hug: :flowery: :hug:

First of all i wanted to send you some gentle hugs and a shoulder to cry on :hug: :hug: :hug:.

I am really sorry that you are having such a tough time of it right now. I really hope that everything goes well for you with the kidney biopsy, i will be thinking of you.

I will be keeping my fingers crossed :fingers: for you that the doctors can get you feeling much better real soon.

Take good care of yourself :bunny: Jo :bunny:
 

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Hello Erin and (((((((hugs))))))

I'm so sorry that you're still feeling this bad and that you have had to go to hospital. It does, however, sound as if it were about time that you went to hospital as feeling that ill and losing so much weight etc. is really not good for you, and that's without mentioning kidneys.

I hope the biospy goes as well as it can and that you'll soon feel a lot better and able to go home,

:hug:
Katharine
 

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Erin,

I hope the biopsy goes ok.

I wanted to tell you my thoughts are with you and my heart goes out to you.

Please keep us posted as to how you get along.

I am so sorry your feeling so bad.:(
 

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Hi Erin,
I really am sorry you are feeling so terrible and are stuck in hospital. :hugbetter: :hug: :hugbetter:
I really hope that they get you feeling better soon.
I wish you all the best with the biopsy tommorrow.
It does sound like even though its not great that you are in the best place.
You really should insist on the pain killers if you've been having them at home, then you be having them in there.
How do they know if pred gets rid of the pain, its not happening to them!!!
I am nowhere near as sick as you and have just been on a six week course of it and i still needed my painkillers, they just stop the pain being at an unbearable level. I really would insist if you can muster the strength.

Take Good Care

Good Luck :luck:

Cassie :)
 

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Hello Erin, You have every reason to feel down. Please try to eat and get a little strength back. I hope you have some nice cheerful visitors.
Love Lola x
 

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Hi

Hi Erin,

Sorry to hear that you are in hospital, I hope that everything goes well for you and you are soon feeling a bit better.

Thinking of you

Beci
x
 

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Hi there Erin,

I know you started this thread almost a week ago now but I just wanted to say that I am also thinking and praying for you. I hope that you are feeling a lot brighter than you were last week and that your Dr's are listening to you and your needs.

Keep us posted if you able and remember that whatever you are going through today, you have a worldwide Lupie family stand/laying with you.

God Bless
K
 

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Discussion Starter #15
well I finally made it home from the hospital yesterday. They did the biopsy, which did not hurt at all, didn't feel a thing actually. It came back with stage 3 nephritis, and they put me back on cellcept and mega doses of prednisone. I still am feeling pretty nauseas, I'm sure I'm still flaring & it might take a while for that to go away. The fevers are almost gone though now, just very slight fevers instead of the 103's. It was a long week & half in hospital, and I spent our anniversary there again. Third year in a row that I've been in hosp. on our anniversary. That's sad. But, I know that it was a good thing that I went, I needed to get better. Hopefully it will be a while now before another flare. I have stopped the methotrexate and will not ever take that again, I think it was too hard to handle. They did talk about rituximab. I'm not sure about that either, since I'm really nervous to take anything. I know I have to do whatever they tell me though. well, thanks again for all your thoughts & prayers & just for being there for me to talk to!!
 

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Hi Erenae :)

Im so glad you are home at last and I hope this latest round of treatment will kick that flare to the kerb :hugbetter:

Its such a shame you have missed another anniversary at home:sad:

Please let us know how you are doing.

Lots of love and strength
Joan:rose:
 

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Welcome home Erenae!

I am glad that you are feeling more human. Now you can celebrate being home and your Anniversary.

I hope the Cell Cept kicks in quickly for you.

Take care,
Lazylegs
 

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Hi Erin,

It is great to hear that you are home from the hospital.
(There is no place like home and your own bed:wink2:)

Take care and when you feel up to it celebrate your anniversary. :rose:

I hope your new meds kick in quickly.

Lyn
 
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