HI! Everyone
I am Avis I am new to website not new to SLE. I have had SLE for 38 1/2 years. It had peracarditis when it was diagonosed. It affected my heart, joint pains and extreme exhaustion. Later on it affected my eyesight I could not see to read,my husband redorded books on tape recorder for me. When I first got it I was very bad unable to do anything for myself, lost the use of my legs for sometime. I slept day and night. For years I went to doctors one doctor told us I was lazy nothing wrong 6 months I was diagonosed. My heart was affected which made me extra tired. My sight came back not the best then I lost my hearing I use a hearing aid. Years later my tricuspud valve was damaged. I have osteoporous and osteoarthritis. we went thrupugh some realy hard times. Having a possitive attitude did help it I tried to hide my pain from my husband. I gave birth to a healty son who is now 30.
I improved when he was born apparently you body makes it own cortizone and I was still on predisone, all was well for a few years with a number of bad flare ups in between. I have had 2 strokes, no side effects, the nerves of my legs have been damaged by the lupus but I am fine, I needed to have a back of twenty years of the first 3 disks in my spine which I turned down now they want to opperate on the three disk by T12 no ways. I fell and broke one of the disks in my spine stubborn me I went to work and physio everyday only picked up when I went for xrays a year later. My Lupus is the reason why I have decided to go on early retiremen at 59. My heart goes out to all you. Always try to be possitive I know it is not easy from expierience
Love
Avis
I am Avis I am new to website not new to SLE. I have had SLE for 38 1/2 years. It had peracarditis when it was diagonosed. It affected my heart, joint pains and extreme exhaustion. Later on it affected my eyesight I could not see to read,my husband redorded books on tape recorder for me. When I first got it I was very bad unable to do anything for myself, lost the use of my legs for sometime. I slept day and night. For years I went to doctors one doctor told us I was lazy nothing wrong 6 months I was diagonosed. My heart was affected which made me extra tired. My sight came back not the best then I lost my hearing I use a hearing aid. Years later my tricuspud valve was damaged. I have osteoporous and osteoarthritis. we went thrupugh some realy hard times. Having a possitive attitude did help it I tried to hide my pain from my husband. I gave birth to a healty son who is now 30.
I improved when he was born apparently you body makes it own cortizone and I was still on predisone, all was well for a few years with a number of bad flare ups in between. I have had 2 strokes, no side effects, the nerves of my legs have been damaged by the lupus but I am fine, I needed to have a back of twenty years of the first 3 disks in my spine which I turned down now they want to opperate on the three disk by T12 no ways. I fell and broke one of the disks in my spine stubborn me I went to work and physio everyday only picked up when I went for xrays a year later. My Lupus is the reason why I have decided to go on early retiremen at 59. My heart goes out to all you. Always try to be possitive I know it is not easy from expierience
Love
Avis
Its lovely to meet you and I hope you enjoy your retirement years. It certainly looks like you earned them. 
