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Hi kirsten. I also have SLE, I was diagnosed in 2002. It was a shock at the time after being so ill for so long. I also had so much pain, and I had to have chemo for my kidneys as well as being on steroids, which i'm still on a small dose of now as well as MMF.
I suppose i'm lucky in a way because I don't have much pain now. The only pain I have is every so often in my back, neck and shoulders.
I am also awaiting a kidney biopsy, i've already had two.

I hope things get a little better for you x
 
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