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Discussion Starter · #1 ·
Hi Everyone,
I was diagnosed with SLE in August. Joint pain, Raynauds and tiredness. Consultant has me on Plaquinol (sp) and I think I'm starting to feel a bit better, at least my knees do anyway and the tiredness is not so bad now:) I'm still trying to digest the news, I'm not too sure how I feel about it:worried: Consultant said I'm on the milder end of the spectrum and I was tested from top to toe and all organs seem to be unaffected so its not so bad. Its a bit of shock though, I really wasn't expecting this. Lots of good info here but I'm not sure if reading about other people's symptoms is a great idea given my fertile imagination:lol:
 

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Well Hello Littleboots and welcome to the site.

We have a few members here also from Ireland too and I have family living in Ireland. You certainly live is a beautiful corner of the world.

I am sorry for what brings you here but certain that you will love this site. The people are very supportive and knowledgeable too. It has been a god send for me.

The Lupus Book by Dr. Daniel Wallace, 4th edition is a good read and you may want to check it out. I am glad your on meds to treat your Lupus and certainly glad it is a mild form.

Nice to meet you and join us in the chat room sometime.:wink2:
 

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Hi Littleboots

Welcome to the Forum. Its nice to meet a fellow Irish woman :) As you can see from my Avatar I am from Dublin and was officially diagnosed with SLE in January 2006 although I was being treated for a connective tissue disease from the previous August.

Yes it is quite a shock to discover that one has a chronic, life long illness and it really does take quite a while to sink in. Its great news that your health seems quite good at the moment and you are responding to treatment :)

You may find from time to time that you will need advice and support from others here who have been on their journey a bit longer. Thats the great thing about this site. Its full of others in similar situations and all are very willing to lend their advice or experience so that it might help others. Its also a very nice place to come to just let off some steam and to know that you will have an empathetic hearing :)

I attend Beaumont hospital. What part of Ireland are you from?

I look forward to getting to know you and in the meantime, welcome again:)

Take care for now
Joan:rose:
 

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Discussion Starter · #5 ·
Hi Joan,
Another lovely warm welcome :) great to meet a fellow Dub ;)although I'm now living just barely over the border in Kildare. I feel its all happened very quickly, reading other people's experience here they seem to have had to go through a lot to get a diagnosis. I first went to GP with pins and needles/wrist pain last December, tested postive for Rh factor, went to see rheuma in Lucan in March, again in May and got diagnosis last month. In between I had surgery in June for an unrelated condition and it seems that may have triggered the latest flare-what a crazy year its been,luckily have felt improvement over the last two weeks. I know Beaumont well, originally from not too far away from it. Its great to know there are other Irish people here, this is all new to me and I keep thinking of new questions all the time.
 

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Hello welcome to Lupus site
Im not yet diagnosed wanted to wish u well im on methotrexate supected ra of some sort and lupus.
ireland how lovely im uk,london.
dulwich its very green .
chat room is fab fun
take care lots good info on here countrylass
 

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Hi again Littleboots

I was struck by your diagnosis journey as it was almost a mirror image of mine. At least it was from the time my GP decided to test me for Rheumatoid Factor. Previous problems didnt appear connected at the time.

Here's my timeline

Tested positive for RF in Jan/Feb 2005
Saw Rheumy April
Saw Rheumy again June
Started Plaquenil August

Very similar eh? ;)

The clincher for my diagnosis were positives for Anti dsDNA, ANA and Anti-Ro - all relevant antibodies. While its true that Lupus can be a difficult disease to diagnose, its not always the case. Sometimes the 'bloods' will co-operate with the symptoms and the two together can paint the right picture in the hands of a good specialist. Other people can often spend very miserable years suffering because theirs bloods are not showing anything out of the ordinary although their symptoms are screaming something else.

Sorry to hear about your recent surgery and flare up. Hope it settles down soon. You might need something along with the Plaquenil to help dampen down the flare. Dont be afraid to let your doctor know if your symptoms are getting worse.

Ask as many questions as you like - its the best way to gain knowledge :)

Catch you soon
Joan:rose:
 

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Discussion Starter · #8 ·
Fingers crossed for you Countrylass- hope you feel a bit better with the meds.

wow Joan-we're like Lupus twins:lol: Rheuma told me about test results but I was in a daze from the diagnosis, I remember him mentioning anti-nuclear antibodies though and when I asked how they differentiate between RA and Lupus he said joint damage (or lack of in my case) as observed in a physical exam. I'm back with him in October so will bring my paper and pen and get the lowdown on my results then. I'm learning loads here already:)
 

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Hello littleboots and welcome to the site. I am glad the plaq is helping you. It does take time to adapt to having and living with lupus. It is a rollercoaster of emotions. It sounds as though your docs were very good. Maybe see you in the chat room sometime!

Deb
 

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Hello, Irish person here too who was not lucky enough to be born in Gods country, instead I am stuck in the Arm Pit of the World.:lol::lol::lol::lol::lol:
:hehe: Karol...if I could I would bestow honorary citizenship upon you!. :lol:

Cheers
Joan:rose:
 

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Why Thank You Joan. I keep telling hubby I may dump his butt and go find a nice Irish guy.:lol::lol::lol::lol::lol:

I will be over to visit next year for sure and I can not wait. Not even a flood of the earth would stop me.:wink2:
 

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Hi Littleboots

And welcome to the site! I'm a fellow Irish lupie - I'm way over on the west coast though, in Co. Mayo. I was diagnosed with discoid lupus first in 2001 and then SLE in 2002.

I've dipped in and out of this site over the years and have found it to be a wealth of good information - if you have any questions, post away, and lots of people will try and help you.

Looking forward to getting to know you -

Take care,

Nellie:)
 

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think things, live life

Hello all,

I am new as well to both this website and to the wonderful world of lupus.

Your support and honesty is very encouraging. It is like the seven stages of grief. Denial, anger, acceptance and then back again.

Lupus is unique in that it varies so much and is ever elusive. Something
hurts or changes and you first have to determine if Lupus is at work or
if your appendix crapping out like lots and lots of people.

The only advise I think I can offer is to never take your friends and family for granted, forgive much, stay out of the sun and though you may never be the person you were - you have the opportunity to be someone better, humbler, considerate and appreciative!

Take care and I look forward to learning more about everyone on the site.

Best,

Carly
 
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