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Is my GP right?

292 Views 5 Replies 5 Participants Last post by  x_claire_x
Hi I have a lot of symptoms that fit the diagnosis of lupus - although I know I may not have lupus. My GP, who is very sympathetic, did two different blood tests to measure inflammation. I'm sorry I don't know exactly what they were. Because they both came back as negative he has said its not lupus.

I just wanted to ask whether you think he is right or whether other tests should be done as well. Thanks for reading this message.
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Hello and welcome :)

If the tests are only "inflammation" markers then no, he is not right. Lupus sufferers often have quite severe inflammation that doesn't show up in bloods.

The first most important blood test that needs doing is the ANA test which if a high positive would be quite indicative of an auto-immune diease. There are then other, more lupus specific tests that can be done.

Lupus and its diagnosis is extremely complex and most GPs, no matter how good, simply don't have the expertise necessary.

If your GP believes your symptoms fit then I would ask for a referral to a rheumatologist despite negative bloods. Make sure to ask to see someone who is specialised in auto-immune diseases - not all rheumies are.

I hope this helps a bit. If you want to see what bloods might be significant in lupus you can take a look at this link

http://uklupus.co.uk/tests.html

Katharine
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