:wink2: Hey everyone, I have been around and diagnosed for about 9 months I guess, the meds are what really confound and confuse me. I mean I know why I am taking them and what they are supposed to do, but the side effects really suck. I am weaning off of prednisone because of weight gain, swollen limbs, and the fact that my right side of my heart is having trouble oxygenating my blood making me extremely breathless.
I have mastered the methotrexate injections,:wink2: they are really an easy way to get that particular medicine. I haven't been sleeping very well at all, in fact there have been times where I will just be sitting on the couch and fall over, or face forward on the floor. (I've been checked out by a neurologist and cardiologist) I have sleep apnea and have called my GP to see if I can get a different mask because the one I have I end up ripping off after about half an hour. I am hoping that the decrease in prednisone and a new mask may bring me some sleep, the fatique is horrible. My neighbor, here in the apartment building, had the nerve to make a negative comment about my weight gain. I alternately wanted to cry or rip his head off, after all what does he know about prednisone and weight gain, I had explained it but he says I eat too much, which couldn't be farther from the truth, the last thing I feel like doing is eating. My puppy is coming soon, I sign the paperwork for him with my sister on Monday, I hope having him aroound will make me smile and get me a bit more active. There are so maany times when I just want to cry at people's misunderstanding, judging, side effects, symptoms and the sheer lack of sleep. I just had to rant for a while, people around here act as if lupus is like a cold and that I should be the same person, with the same level of activity as I was before. Karly:shrug: