[Ocean1]

Hi, Just thought id share
So ive been diagnosed with CFS :sad: but my GP suspects Lupus or some other auto-immune condition, however my bloods have been negative :worried: At the moment i am in the process of making a private appointment at the London lupus centre to find out once and for all whether its lupus or not!
So whilst im waiting on appointments etc i thought id do some research, Ive been having some weird symptoms over the last year (see another post by me entitled - 'opinions please' :wink2 and through this site have done some research and finally things are i think starting to add up!!
I have complained to my GP about excessive thirst and burning/stinging eyes these symptoms are not generally seen with CFS and had me thinking and after some research i think that i may be suffering with syrojens (spelling?) syndrome and the excessive thirst is actually my mouth feeling very dry making me think im thirsty and my eyes are stinging because they are also dry! Just a thought anyway!
Also ive been looking at Hughes syndrome and fit almost all of the symptoms -migraine, vasculitis etc (no miscarriages - but ive not been trying to get pregnant yet! :blush
I know that all of these conditions are linked with Lupus and am finally/ hopefuly making sense of whats going on! So thanks for all your guidance and helpful information on this site, Its really helped, and i cant wait to go to the lupus centre to see what they think! I know i shouldnt really self-diagnose as this can be dangerous but for the first time in ages things are adding up a little!
Thanks for reading any opinions/ideas greatly recieved, what a great site this is! Congratulations!
Bex x x x x

 

[greenhaggis]

Bex,

Just one thought - have you been to an optician for a sight test! They will also access your eyes for dryness and even refer you on to an eye specialist!

This is how I started my journey toward finally being diagnosed with SLE! If you have dry eyes dont wait for the Rhuemi side of things - go get them examined! Obviously you need to see someone for the other problems 'sonner the better' but you can get the eyes sorted or examined on the high street even sooner!

Lesley!

 

[Postie]

Bex

I wanted to reply to your post when you mentioned you were just diagnosed with CFS. I have had CFS since 1998 and was diagnosed with it in 2003. So now my symptoms are starting to change and now I'm trying to research things on Lupus.

CFS and Lupus are so alike that it's crazy.

CindyLou