[janice44]

Hi found this site whilst looking for heated gloves, I have scleroderma and secondary raynauds so badly that I have had 4 fingers amputated and i live on the Gold coast Australia, where our winters by every body elses standard are mild, was disappointed to read that heated gloves don't help, what now then?

 

[LolaLola]

Hello Janice,
I am no expert on Scleroderma but other girls here do have experience of it. I am sure they will be along soon to answer you. Welcome here anyway.
x Lola

 

[Katharine]

Hello Janice and :welcome:

I'm afraid I only have very mild raynauds so don't have any useful suggestions but a lot of people here suffer from it more severely and I'm sure there will be some suggestions soon.

I'm sorry to hear about the loss of you fingers, that sounds very ouch

bye for now,
Katharine

 

[x_claire_x]

HI Janice.. I have tried ordinary heated gloves that haven't helped, however am going to try some that I have found on the web that are ski gloves with an adjustable temperature control unit on them and they are supposed to warm up right to the end of the fingers.... they are quite expensive so hope they work.. My Raynauds is severe, struggle to keep them a decent colour and temp all day whether it is cold or not so cold... apart from when I holidayed in the Caribbean!!!! The other things that help are microwaveable gloves but you can't wear them outside they are bulky and heavy but great to warm you up again.. I even put them on my feet (get raynauds there as well...)much to my family's amusement! I take it you have been prescribed something like adalat to help with the vasodilation to your fingers.. I have but am loathe to try them as it is yet another drug to take.. I also take something for BP to protect heart and kidneys which is supposed to help raynauds but makes absolutely no difference whatsoever so far.... hope some of that rambling helps a bit, I wish you all the best and hope you find some relief..XX
Claire X

 

[dixy]

Hi janice

gosh hno:hno:hno:

I have raynaulds and sclerderma take loads of meds ones to warm me up open my blood vessles up. Ive had isloprost and ramapril. hate taking meds but guess they r doing the job . I put heat packs in the microware. find if i use pressure say just turn a tap on it can start it off. LOVE GARDENING but can only use cutters for a few mins before may fingers get 2 painfull.:sad:

hope u find something 2 help big hug
dixy

 

[onetay]

Janice,
I am sorry that I do not have any experience with your problem, but there are others on the site that do. I do hope that they come along soon and can help you with your problem. I did want to say Hi and Welcome to the site. I do hope that you will come and chat with us in the chat room. We can all share information and wish we lived where you live at least in the winter lol. I do hope that you are doing well and are feeling well.

 

[dixy]

just a quick one think u can get wristbands to put on that warm u hands up

 

[Merle]

Hi Janice

I have mild raynauds and after many years of trial and error, I have found that I can go skiing without the excruciating pain.

First, it is essential that your core is kept very warm and not just your hands - since the reaction of closing off blood to one's extremities (hands and feet) is to preserve core temperature.

I wear specialist ski/climbing gloves - a pair of silk under gloves under a pair mountain climbersmittens (so that fingers gain heat from one another and rest of hand). The mittens are like a pair of small duvets and most importantly, are long enough to extend part way up the forearm, covering your inner wrists, where lots of heat can be lost.

I also use the hand and feet heat sachets (break seal and chemical reaction releases heat) - also sold in ski and climbing sports shops.

Hope this helps.

Take care.

Merle

 

[marymackay]

Raynauds in Qld

Hi Janice44
pleased to see you onsite. Welcome. I'm also in Qld in Mackay on Northeast coast. Sorry to hear that you have had Raynauds so badly.

I have had many symptoms over life. In Melbourne when young, always had severe chilblains on hands /feet, then when married, would put clothes on line, after cold water rinse, had to put into hot water.for pain.

But up here in Tropics, nothing further till symptoms, lupus/aps-hands/feet ,joints etc, then in 2005- white hands in winter, couldn't touch anything, so had to wear gloves. Plaquenil has helped me since Sep 2007. Still seeing many specialists. My mother had tiny hands, always white and cold in Melb winter.
I bought the aromatherapy lavender scented polar fleece mittens from Priceline chemists.
All the best
Marymac