Hi All,
I was just officially diagnosed with Lupus and Sjogrens Syndrome yesterday. I have a 21 year old son and a 14 year old daughter. I had 8 miscarriages in between the two of them. Thankfully I had an OB/GYN at the time that ran an Anticardiolipid/ Antiphospholipid panel on me and found that I had Hughes Syndrome back in 1993. Not sure if they even had that name for it back then. At that time I took a baby aspirin every day while I was pregnant with my daughter and it worked...... My next step had I miscarried with my daughter would have been Heparin. Luckily I never had to try it. Thankfully for that same doctor I have now been diagnosed with Lupus and Sjogrens. My family doctor probably would never have thought to look for it had my OB/GYN back then told me to keep an eye on it down the road and watch for symptoms.
Well for the past three years I have slowly been developing the sypmtoms, and was too bull headed to admit it..... Now I am to the point I am having blurred vision, severe migraines, high blood pressure, joint pain, severe photosensitivity which stinks because we vacation at the beach every summer, and the past 3 years I end up covered in what I have called Hives even though I cover myself in sunblock (showed the Rheumatologist pictures from vacation and he actually laughed about the hives or at me... not sure what he found so amusing) dry mouth, hair loss, severe back and neck pain, anxiety, constant fatigue, weight gain because I am too tired to exercise and depression.
I kept it all in for the past three years because I was raised that strong people are "silent sufferers" Well I have been strong long enough!!! I can't do it anymore, and I refuse to live like this!!! So I went to my family doctor who called me at work, and told me that my blood work was off the charts and it looked as though I had Lupus along with another autoimmune disease called Sjogrens Syndrome (I had never heard of it) and he wanted me to see a Rheumatologist immediatley. Well I went to the Rheumatologist yesterday......... Absolutley could not stand him. He had about as much personality as a door knob!! So.........I made an appointment with a new Rheumatologist who is my age (which is 38)
the guy I saw yesterday was probably mid to late 60's who acted as though he could have cared less about me. So I am keeping my fingers crossed I like the next guy better. The guy yesterday looked at me and said basically, "yes you have Lupus, and yes you have Sjogrens, but I am going to do more lab work, you can call me on the phone next week and I will go over it with you and tell you what meds I am going to put you on". End of appointment!!! It was awful. My husband was furious!!! I go to my new Rhuematolgost December 8th.... Keeping my fingers crossed nothing gets worse until then!! I am so glad I found this website... I have had so many questions answered from readin everything on here! What a god send this has been to me!!! Thanks to all of you!!
I was just officially diagnosed with Lupus and Sjogrens Syndrome yesterday. I have a 21 year old son and a 14 year old daughter. I had 8 miscarriages in between the two of them. Thankfully I had an OB/GYN at the time that ran an Anticardiolipid/ Antiphospholipid panel on me and found that I had Hughes Syndrome back in 1993. Not sure if they even had that name for it back then. At that time I took a baby aspirin every day while I was pregnant with my daughter and it worked...... My next step had I miscarried with my daughter would have been Heparin. Luckily I never had to try it. Thankfully for that same doctor I have now been diagnosed with Lupus and Sjogrens. My family doctor probably would never have thought to look for it had my OB/GYN back then told me to keep an eye on it down the road and watch for symptoms.
Well for the past three years I have slowly been developing the sypmtoms, and was too bull headed to admit it..... Now I am to the point I am having blurred vision, severe migraines, high blood pressure, joint pain, severe photosensitivity which stinks because we vacation at the beach every summer, and the past 3 years I end up covered in what I have called Hives even though I cover myself in sunblock (showed the Rheumatologist pictures from vacation and he actually laughed about the hives or at me... not sure what he found so amusing) dry mouth, hair loss, severe back and neck pain, anxiety, constant fatigue, weight gain because I am too tired to exercise and depression.
I kept it all in for the past three years because I was raised that strong people are "silent sufferers" Well I have been strong long enough!!! I can't do it anymore, and I refuse to live like this!!! So I went to my family doctor who called me at work, and told me that my blood work was off the charts and it looked as though I had Lupus along with another autoimmune disease called Sjogrens Syndrome (I had never heard of it) and he wanted me to see a Rheumatologist immediatley. Well I went to the Rheumatologist yesterday......... Absolutley could not stand him. He had about as much personality as a door knob!! So.........I made an appointment with a new Rheumatologist who is my age (which is 38)
the guy I saw yesterday was probably mid to late 60's who acted as though he could have cared less about me. So I am keeping my fingers crossed I like the next guy better. The guy yesterday looked at me and said basically, "yes you have Lupus, and yes you have Sjogrens, but I am going to do more lab work, you can call me on the phone next week and I will go over it with you and tell you what meds I am going to put you on". End of appointment!!! It was awful. My husband was furious!!! I go to my new Rhuematolgost December 8th.... Keeping my fingers crossed nothing gets worse until then!! I am so glad I found this website... I have had so many questions answered from readin everything on here! What a god send this has been to me!!! Thanks to all of you!!
