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HI, my name is Neece, I was diagnosed with lupus just this last week. I was diagnosed with fibromyalgia in 1998.

I suppose I am glad it finally has a name and a treatment as I have not been "right" for many many years. The fatigue and sleepiness is overwhelming.

I do manage to work everyday but come straight home and take meds and go to bed. The house certainly suffers.

I was diagnosed last month with Hashimoto's Thyroiditis so I put on alot of weight very quickly. Hopefully it will begin to go back down now that I am on thyroid treatment.

I don't really know what I am looking for by joining this board except to find out that I am not out here all alone.

Thanks for "listening"
 

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Moderator
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Hi Neece,
Welcome to the forum, it is nice to meet you.

You are right there is a lot of emotions we go threw when told we have lupus.

The lupus fatigue is a big issue. I ended up sleeping 90 minutes this afternoon. I have learned to listen to my body and when it runs out of gas I lay down.

Did you know that we can be sensitive with our light bulbs? Here is one of many threads about it.

http://www.thelupussite.com/forum/showthread.php?t=66718&highlight=light+bulbs

This is the page I found when I did a search for it.

http://www.thelupussite.com/forum/search.php?searchid=171647

Most of us react with the sun.

I am glad you decided to join us. It is nice to feel that we are not alone. The members here are very caring and willing to share their experiences dealing with lupus.

We have a chat room that you can talk one on one with other members. You can get instant feed back and meet members from all over the world.:)

Take care of yourself.
Love,
Lyn
 

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Administrator
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:welcome: Neece,

The Lupus symptoms may mask some of the improvement with your thyroid. Even so the thyroid medication should help you feel somewhat better. You should notice an increase in energy. Any mood swings should decrease. The weight loss takes a little longer. The doctor may need to play around with the dosage to find the right one for you.

Letting the house go is the right thing for now. You need the rest more. My husband always reminds me the mess will wait for you, it won't go anywhere :rolf:

Take care,
Lazylegs
 

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Hi Neece, and welcome to the board.
I have found that this is one great place to come. It doesn't matter if you have dealt with lupus for decades or hours. We are here to support one another.

The moderators here are superb. They live with and know lupus. If they don't know something, they know where to go to look for the answer.
Sally
 

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Hi there Neece and welcome to the Forum.

Im sorry you have been diagnosed with Lupus but glad you found us. Dont worry about what to say - questions will come over time. Right now its enough to absorb the fact that you have this disease. Take your time and have a look around the site. As well as the information on the Message Boards there is also more generalised information on the main part of the site itself

http://www.thelupussite.com/

What treatment have you been started on for the Lupus? I presume you have been prescribed a drug called Plaquenil? If so, this usually takes quite a while to feel the benefits as it has a cumulative effect on the ph balance of our cells which, over time, helps to minimize flare-ups.

Have you been on any treatment for the Fibro? Much of the treatment is geared towards lowering pain levels and helping get restorative sleep.

If I can give you any advice at this stage, its to start keeping a diary/record of how you feel and how the treatment is impacting your symptoms. This kind of information will be very useful to you and your specialist in the months ahead because sometimes it can take a while to get the right balance of medications. A lot of people, especially in the early stages, might find themselves on a combination of medications to dampen down disease activity and aim for an 'even keel' so to speak.

You certainly wont be alone as long as you are part of this site :hugbetter: Its a very active place and someone will always be along to answer your questions or offer support or advice where needed.

Take good care of yourself and I look forward to getting to know you better
Luv n stuff
Joan:rose:
 

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Dear Neece,
You are most certainly not alone out there.
Big Welcome to you. There may seem to be a lot to take in at the moment but don't worry we all become competent at handling our symptoms very quickly.

I don't know if you have a supportive family, but even if you do there are some things which you really need a fellow Lupie for. My Lupus friends are extremely important to me and I am a long term patient.

You may well improve considerably with treatment. Some of us here are more badly affected or have other conditions too, please don't feel this means you will be like that. We are not a very representative sample, i.e if it weren't for the extent of my symptoms I would be out earning money!
x lola
 

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elisabethm
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:welcome:Neece you will find loads of new freinds on the site we all try to help one another.Another good place to be is the chat room you meet people that have the same problems.But there is allways someone that will get back to you Hope to speak to you again Elisabeth
 

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The Other Illinois Tammy
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1,193 Posts
Neece,
Hi and welcome to the site. You are not alone and will never be alone as long as there is no cure for lupus. If you are here you need to be able to talk with people like you and to understand what you are going through. It is ok we all have been were you are and it is ok to want to know and to talk to others like you. I do hope that you would take our hand in friendship and as for our support when and if you need it. Nothing surprises us here and I have not run across anyone here that judges. I hope you find the site informational and helpful. We have a chat room that I hope you will come and join us in a chat. I hope you are feeling well and doing well.
 
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