Joined
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17 Posts
Hi ya everyone
Well I joined the forum quite a while and did a couple of posts but after my results came back negative again for Lupus I started to think that I was talking myself into having something I haven't.
To cut a long story short after feeling much worse the last few weeks with new problems as well as the old ones I went for some blood tests that needed to be done for the hospital and I saw my GP before the blood was taken and he added the Lupus test to the list of what tests needed doing
I went to the hospital yesterday and the Lupus test came back positive this time. The thing is it has left me feeling really confused with my emotions. You want answers to know why you have been feeling so rotten in my case for the last two and half years and you are pretty sure that it is Lupus but now I have been told I was right I don't like it one little bit. I am relieved that now I do have answers and I can start proper treatment instead of stabbing in the dark at what may work or give some relief but I think I am a bit scared as well of what happens from here on in. I know that Lupus affects everyone differently but maybe that is the worrying bit part for me you don't know what to expect from the future, that things will get better, get worse or stay the same and of course no one has the answer to that one
I have been trying to talk to my husband about how I am feeling but I may as well talk to the wall as he changes the subject everytime I speak. I just wondered if anyone else had felt this way when they got their results even though they suspected that Lupus was the problem.
I have been given immune suppresents, steroids, anithistamine and something to protect my stomach I think from any side affects of the immune suppresants so all a step in the right direction and of course I can do list of questions for when I next go back to the hospital Thing is they didn't even as much as give me a leafltet about Lupus but I know there is lots of good advice on here.
Many thanks in advance for taking the time to read this message
Jules
X
Well I joined the forum quite a while and did a couple of posts but after my results came back negative again for Lupus I started to think that I was talking myself into having something I haven't.
To cut a long story short after feeling much worse the last few weeks with new problems as well as the old ones I went for some blood tests that needed to be done for the hospital and I saw my GP before the blood was taken and he added the Lupus test to the list of what tests needed doing
I went to the hospital yesterday and the Lupus test came back positive this time. The thing is it has left me feeling really confused with my emotions. You want answers to know why you have been feeling so rotten in my case for the last two and half years and you are pretty sure that it is Lupus but now I have been told I was right I don't like it one little bit. I am relieved that now I do have answers and I can start proper treatment instead of stabbing in the dark at what may work or give some relief but I think I am a bit scared as well of what happens from here on in. I know that Lupus affects everyone differently but maybe that is the worrying bit part for me you don't know what to expect from the future, that things will get better, get worse or stay the same and of course no one has the answer to that one
I have been trying to talk to my husband about how I am feeling but I may as well talk to the wall as he changes the subject everytime I speak. I just wondered if anyone else had felt this way when they got their results even though they suspected that Lupus was the problem.
I have been given immune suppresents, steroids, anithistamine and something to protect my stomach I think from any side affects of the immune suppresants so all a step in the right direction and of course I can do list of questions for when I next go back to the hospital Thing is they didn't even as much as give me a leafltet about Lupus but I know there is lots of good advice on here.
Many thanks in advance for taking the time to read this message
Jules
X