Finally after three weeks of waiting, my second Rituxan treatment has been approved. For some reason it was put into the "I am not sure pile of paperwork" Despite my symptoms of CNS Lupus getting worse on a daily basis and weekly prednisone IV treatment, they were not sure if I really needed this medication. ( I am having trouble talking, walking, balalncing, seeing etc)
My anger and frustration are passing and know I am again worried about having this treatment and hoping it will last a little longer than the last (it only lasted 3 months).
I know have 5 Rhumie specialist who now look after my treatment. This is apparently knew to all of them - re treating patient with Rituxan in such a short space of time and the fact that the treat ment did not last very long.
Any way on the funny side I did loose my car this week as I picked up my boys from school, a friend did kindly re direct me accross the road to where I parked it, I also got lost at least three times just going to the supermarket, I go there often but I had to call my husband and ask for directions.
Wish me me luck, my treatment is this week and thank you for letting me vent of this.
Peta
My anger and frustration are passing and know I am again worried about having this treatment and hoping it will last a little longer than the last (it only lasted 3 months).
I know have 5 Rhumie specialist who now look after my treatment. This is apparently knew to all of them - re treating patient with Rituxan in such a short space of time and the fact that the treat ment did not last very long.
Any way on the funny side I did loose my car this week as I picked up my boys from school, a friend did kindly re direct me accross the road to where I parked it, I also got lost at least three times just going to the supermarket, I go there often but I had to call my husband and ask for directions.
Wish me me luck, my treatment is this week and thank you for letting me vent of this.
Peta
