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8,577 Posts
Hello everyone,
Until a couple days ago I hadn't posted in several months. I finished the cyclosporine infusions in September and have had pretty good results from them. I still have some inflammation but we have decided to delay any additional infusions for now. Lots of things are better in my life. I even had softening in my hands as a result of the chemo. The main concern was my lungs being affected by the Scleroderma.
I am still having real problems with my shoulder and that makes typing painful after awhile. That is part of the reason I haven't been around. I do miss all of you and am trying to start popping in at least for short amounts of time. I have had an MRI on my neck and do have some issues that are contributing to the pain but nothing significant and I will NOT be having surgery. I have had spinal stenosis for at least 20 years probably longer. The normal curvature of the spine in the neck and top of my shoulders is gone and that is putting some stress on the nerves. My rheumy gave me one injection in one shoulder joint which as help a tiny bit. I see my pain doctor a week from Monday. Now that the cyclo is behind me we can discuss what further testing needs to be done. I am a bit concerned that it may be my rotator cuff but I am focusing my attention elsewhere since that possibility won't be explored till my appointment.
I hope everyone is plugging along.
Take care,
Karen
Until a couple days ago I hadn't posted in several months. I finished the cyclosporine infusions in September and have had pretty good results from them. I still have some inflammation but we have decided to delay any additional infusions for now. Lots of things are better in my life. I even had softening in my hands as a result of the chemo. The main concern was my lungs being affected by the Scleroderma.
I am still having real problems with my shoulder and that makes typing painful after awhile. That is part of the reason I haven't been around. I do miss all of you and am trying to start popping in at least for short amounts of time. I have had an MRI on my neck and do have some issues that are contributing to the pain but nothing significant and I will NOT be having surgery. I have had spinal stenosis for at least 20 years probably longer. The normal curvature of the spine in the neck and top of my shoulders is gone and that is putting some stress on the nerves. My rheumy gave me one injection in one shoulder joint which as help a tiny bit. I see my pain doctor a week from Monday. Now that the cyclo is behind me we can discuss what further testing needs to be done. I am a bit concerned that it may be my rotator cuff but I am focusing my attention elsewhere since that possibility won't be explored till my appointment.
I hope everyone is plugging along.
Take care,
Karen