[Lupo30]

Hello everyone.

I've been diagnosed now with SLE for over a month now and have been reading everyone's posts daily, which has kept me going. I really feel very down at the moment as I have had to give up my job and studies over the last 6 months because of this awful disease. I have other conditions, like many of you, mine being diabetes (type 1) and coeliac disease but I've got another to add to my list now. Am on steroids and hydroxychloroquine but they just make me feel really irritable. I hope I get better soon as I am so fed up of feeling like this.

 

[kim5010]

Just wanted to say Hi and welcome you to the group. Hope you find this group of people as knowledgeable and wonderfully supportive as I have.

Its a great help and support when dealing with all the stuff that comes aour way!

Hugs!

Kim

 

[cad]

Hi there,
Welcome to the site. Sorry that you are feeling so awful.
How long have you had diabetes? I am diabetic too and have been since i was 2 so 29yrs now.
It's good that you are on some meds, hopefully you will begin to get some benefit from them soon.
How has the disease been affecting you?

Hope to talk soon. It's interesting to meet another triple autoimmune curse victim, i really empathise with you, it's really tough. I hope you feel better soon.

Take Care

Cassie

 

[Lupo30]

Hi Cassie

I've been diabetic since I was 9 years old and my coeliac disease was diagnosed 5 years ago. There has been great problems with controlling of my blood sugars so I can't take the amount of steriods that the rheumatologists would like me to take. I've recently had to change rheumatologists though as it was just too far for me to travel, so my diabetic physician got me referred to one at a hospital nearer to my home. I am in a lot of pain with my hands, wrists, neck, shoulders and toes. I cannot concentrate on things. I really miss being able to read a chapter of a book and watching a tv programme all the way through. I am having an mri scan of my head to exclude cerebral vasculitis and they are also looking at secondary srojen's as well. The fatigue is awful, I got so excited the other day because I was able to get up and get washed, and then I cried because I felt so sad because I was getting excited over such a simple thing. I just keep hoping that things will get better.

Thanks for your welcome xxx

 

[lazylegs]

Hi Lupo,

Welcome to the site. I hope you continue to find useful information. The people here are great and more than willing to share their experiences. Try visiting the chat room, when you are down there is usually someone to help pick up your spirits.

Pain, fatigue and brain fog do make it difficult to function. Hopefully your medications start working for you soon. In addition to your meds consider doing some stretching and breathing exercises. Nothing heroic, just enough to keep those muscles strong enough to support you during this time of inactivity.

Good luck with your MRI.

Take care,
Lazylegs

 

[LolaLola]

Hello Lupo, It is good that you posted. When you are stable on your lupus meds. (which can take a little time) you will feel better. I can well remember the symptoms you describe.I even used to find shoes too heavy for me to walk in.
x Lola

 

[KarolH]

Hi Lupo and welcome to a great place.

I am new to Lupus also, dx in June.

Has your doctor prescribed anything for fatigue? Provigil works well IMHO.

I am sorry your feeling down right now but once the medicine starts working I think you will feel like a new person.

Nice to meet you and I hope to get to know you better.:wink2:

 

[Lupo30]

Thanks everyone for your messages, they're keeping me going. I'm just waiting for my medications to kick in (prednisolone and plaquenil) and hopefully then things will be easier. Thanks again.