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Kidney and bladder problems

367 Views 10 Replies 7 Participants Last post by  Gerri54
Back from Ultra sound

I was surprised that after emptying my bladder I retained 286 cc of urine. My Urologist last time I was that high diagnosed me with MS. Neurologist said no MS.

Now I am learning you can have bladder problem with Lupus. Lupus nepatis (sp) which will cause you retained urine. Twenty minutes later I was asked to empty my bladder again. Even after emptying my bladder the 2nd time I still retained 165 cc.

My Urologist said that if I continually retained over 100 cc to self catharize myself. I really don't want to do this but I am getting more UTI infections. So I guess I am back to self catharizing myself, no fun.

Yesterday I had 40 blood test done (9 tubes of blood were taken). Today the ultra sound showed urine retention, and I have kidney problems. What else it showed I am not sure.

My face, hands, are continuing to swell. Like I told my doctor I am also in lots of pain like 365 days of year 24/7.

Hoping for answers soon. I am going back to see my doctor October 31, not soon enough for these answers.


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Lily, you bring up a good point. If our immune system is overactive, why would anyone get UTIs? Is it because the meds are suppressing the immune system too much? In that case, lowering the meds help? I don't currently have UTI problems, but I know many lupies do.
I see. So I guess having an overactive system doesn't help with the kind of bugs that start UTIs. It would be nice if there was at least that small benefit. Thanks for the information.
Now I'm getting confused, but I'm having some brain fog right now so that may be the problem. During the past few years when I started with the AI symptoms, those were the years when I no longer caught colds, viruses, bronchitis like I used to, ect. I wasn't sick a day for several years, while everyone around me was coughing and sneezing. My understanding was that because my immune system was overactive, my body was not only fighting itself, but every bug that tried to get me. I also thought that one reason we are more suseptible to infection while being treated is because the drugs suppress our immune system and if the proper balance isn't there, we are more prone to various infections. MY RD said the drugs shouldn't suppress us so much as to make us more suseptible, just make it more like a normal immune system, but it's tricky to get the right balance.

Now, what you're saying does make sense to me, kind of like the pick-pocket stealing your money while you're being distracted by his accomplis, but the two scenarios seem to be different. Please believe me, I'm not trying to be contrary, I'm just confused at this point and it's important to me to understand what's going on. I thought I did, but now I'm not so sure. Duh.
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