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Kidney and bladder problems

368 Views 10 Replies 7 Participants Last post by  Gerri54
Back from Ultra sound

I was surprised that after emptying my bladder I retained 286 cc of urine. My Urologist last time I was that high diagnosed me with MS. Neurologist said no MS.

Now I am learning you can have bladder problem with Lupus. Lupus nepatis (sp) which will cause you retained urine. Twenty minutes later I was asked to empty my bladder again. Even after emptying my bladder the 2nd time I still retained 165 cc.

My Urologist said that if I continually retained over 100 cc to self catharize myself. I really don't want to do this but I am getting more UTI infections. So I guess I am back to self catharizing myself, no fun.

Yesterday I had 40 blood test done (9 tubes of blood were taken). Today the ultra sound showed urine retention, and I have kidney problems. What else it showed I am not sure.

My face, hands, are continuing to swell. Like I told my doctor I am also in lots of pain like 365 days of year 24/7.

Hoping for answers soon. I am going back to see my doctor October 31, not soon enough for these answers.


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Hi Gerri,

I too hope this week goes quickly and that you get some answers and appropriate treatment.

Did your urologist not explain about double voiding to you? I found it helpful when I was retaining urine. You go and then stand up for a second and try again, you seem to get a more complete emptying then. Certainly helped me. I was fortunate enough not to get a string of UTI's I think my Lupus was so active it never let any germs take hold.

Hi Jesse,

I was really speaking prior to medication when things were out of control. Even now I think now in my case my meds are pretty well tailored and I'm not suppressed too much but just enough to control the Lupus in the most part but not let bugs get hold.

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