Joined
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7 Posts
Hiya
I haven't posted much her, minaly becuase my husbands lupus has been ticking along and not causing any more problems than usual.
Last time but one that he went to his rhumatologist he was told that his kidney function was at about 20%, so I presume that his GFR was around 20, I will ask next time though. At his last appointment he was told that his creatinine (sp?) levels were higher and that his calcium was lower. That was a couple of weeks ago, but for the last week he has been suffering with terrible itching all over, there are no physical signs though, as a result of this he hasnt' been sleeping more than a couple of hours a night and is exhausted. he's also nauseaus all the time. He went to the GP today (who is extremely good) and he thinks that it is more problems with his kidneys. A couple of years ago we were told that his kidneys could last 10 days or 10 years but he was thinking about 5 years was more likely.
I believe that one the GFR hits 15 it is classed as kidney failure. Given that he also has Hughes Syndrome I was wonding whether anyone had any experience regarding the combination of the two. When he had his first kidney biopsy he almost bled to death becuase they didn't control his INR sufficiently for the procedure.
Really I guess I just want to know if anyone else has been in a similar situation. he is so out of it at the moment he can hardly remember things from one moment to the next. He also (so far) works full time, and I know he will be worrying about that. We have a young son and I have mental health problems so am feeling at rather a loss at the moment,and rather alone, which is horrible.
I'm hoping I post this in the right place, sorry if I don't.
Terri
XX
I haven't posted much her, minaly becuase my husbands lupus has been ticking along and not causing any more problems than usual.
Last time but one that he went to his rhumatologist he was told that his kidney function was at about 20%, so I presume that his GFR was around 20, I will ask next time though. At his last appointment he was told that his creatinine (sp?) levels were higher and that his calcium was lower. That was a couple of weeks ago, but for the last week he has been suffering with terrible itching all over, there are no physical signs though, as a result of this he hasnt' been sleeping more than a couple of hours a night and is exhausted. he's also nauseaus all the time. He went to the GP today (who is extremely good) and he thinks that it is more problems with his kidneys. A couple of years ago we were told that his kidneys could last 10 days or 10 years but he was thinking about 5 years was more likely.
I believe that one the GFR hits 15 it is classed as kidney failure. Given that he also has Hughes Syndrome I was wonding whether anyone had any experience regarding the combination of the two. When he had his first kidney biopsy he almost bled to death becuase they didn't control his INR sufficiently for the procedure.
Really I guess I just want to know if anyone else has been in a similar situation. he is so out of it at the moment he can hardly remember things from one moment to the next. He also (so far) works full time, and I know he will be worrying about that. We have a young son and I have mental health problems so am feeling at rather a loss at the moment,and rather alone, which is horrible.
I'm hoping I post this in the right place, sorry if I don't.
Terri
XX