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Hi all, I haven't posted on this site for quite sometime. I miss having the time to come online and talk on the forums.

Last Friday I had my Ultrasound results come back saying that I had several tumors on my left kidney.

I am now constantly having anxiety attacks. I am scared. I think I am driving my husband nuts. Everyone says to think "positive" and not worry... but how???

I started having very sharp and intense pain in my side and back nearly 2 years ago. When the pain didn't go away after a couple months I told my Rheumy.
She said it was nothing and it wasn't "her" problem.

So I thought it might just be my scoliosis pulling on my ribcage and it putting pressure on one of my organs. After all the dr couldn't be wrong right?

Almost 2 years later I am told I have several tumors.

I am SO LIVID!

I did some research on Metho, which I had been taking when the pain started. I quit taking it in September of last year. My Rheumy never did any Renal tests or Chest X-rays while I was on Metho. From what I read on the drug she should have. She just checked my liver every 6 weeks.

I don't know what to think... should I contact a lawyer about her?


I can't stop crying. 90% of solid tumors are cancerous. I am only 23 and it just all seems so unfair. I am sick and tired of this stupid body I live in. :(
 

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Hi Tabitha

My heart goes out to you - I know how scary it is when you get a diagnosis like that. Two years ago after a routine ultrasound they noticed I had a lump on my kidney. I totally freaked out. And now after several ct scans they still cant decide if it is benign or not. They think its ok but are not 100% sure!:rolleyes:

When my total brain/emotion trauma subsided a little I heard the consultant say that if it was malignant then they can remove the one and you can manage quite well with the other one. (Yes - he said it as casually as that!!)

In fact at one point he offered to take it out just in case it was malignant - and I said 'Er... NO .. but thank you for the offer!:eek: If it is ok then you would be removing a healthy kidney!!

When you get your emotions 1/4 % stable, I hope you are able to talk through all the implications and options with your consultant, doctor and anyone else involved. Your first reaction was normal - now its time to back up and re-group.

If I may suggest that the anger you feel about the treatment you received might be put away for the moment? I am not belittling what happened but you have more important issues to deal with right now - that can wait. You need to be thinking clearly and have plenty of energy to deal with stuff like that!

So, darling girl, take a deep breath, hang on to hubby, dont look on the internet, dont listen to scary stories and find someone (who knows what they are talking about) who you can ask all the questions you need to -maybe your doc, or a district nurse, or someone at the hospital. Dont be afraid to ask people.

That must be your little munchkin in the photo - looks gorgeous - how old?

I will be praying for you and wait to hear how things are going.

HUGE HUG X X X X X
 

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(((((((((hugs)))))))) You have been through a lot lately:( . Since your confidence is totally blown where your original rheumy is concerned, rightly so, you definitely need to get a new rheumy. Maybe another opinion from a nephrologist on your results would be good too? On a brighter note, kidney cancer runs in my moms side of the family, several female relatives have had to have surgery and kidneys removed and went on to live long, otherwise healthy lives, many before there was much in the way of chemo or other treatments. I agree with peapods about waiting to take action where your rheumy is concerned, it is just one more stress that you don't need right now. Hang in there!
 

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Hello and welcome,

I'm afraid I have no advice as I haven't had any such experience but wanted to say that my heart goes out to you and I will send as many virtual hugs, good thoughts and positive vibes winging your way as humanly possible!

As the others have said "Hang in there"

hugs
:grouphug2:

Katharine
 

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Hi Tabitha,

I am very sorry, that your facing this in your life now. Anger, is an understandable emotion, after what you have been through..but, the other's have given you very good advice, about saving your energy, and using it to figure out, how best to address, this latest health crisis you are facing.

I hope the very best for you Tabitha. I will have you in my thoughts..with your very special needs and concerns.

Love,
Sandy
 

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I'm so sorry to hear about this turn of events. I would be LIVID too if I had pain that was ignored by my doctors for two years and only now have they found all those tumors on the kidney. But I have to agree with the others that you need to find specialists that you can trust, get a second opinion quickly if you can, and take action to protect your health and find out exactly what kind of kidney tumors you have & get the treatment for it.

You can always leave instructions with your husband to go after that doctor if it does turn out to be the worst case scenario; for now though spend your energy on fully diagnosing and treating the problem. I hope you're one of the 10% with benign tumors. Good luck and please keep us posted on how you are doing and what you find out.
 

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(((Angel))))

I am sorry to hear what you have been going threw.:(

I think I would get a new rhumey. I don't blame you one bit for being livid. Like the others have said you need to get your health taken care of first.

:posy:
Lyn
 
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