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Discussion Starter · #1 ·
hello everyone...

im 40 years old and was dx with huge ovarian cyst and looks like it has to be removed it is complex cyst ,my question is does this mean i will have to through a flare and any special preparation for lupus patients im scared never had surgey in my life but i have no choice as ov cancer is not an option they really want the cyst out ??? anyone been through surgery with their disease??/ my raynaud's will probably go crazy because hospitals are so cold ,i could imagine the or room????

thank you for any advice:sad:
trinity
 

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Hi Trinity,

I am sorry to hear you need to undergo surgery. Even without Lupus facing surgery can be daunting. Do you have a date yet?

A few years ago I had a hysterectomy and did just fine. Neither the Lupus or the Raynaud's flared. The nurses were wonderful about bringing in extra blankets when I requested them.

I suggest you contact your Rheumatologist to see if you need to make any adjustments to your medication for the surgery.

Take care,
Lazylegs
 

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Hi Trinity,
I've gone thru several surgeries and laparoscopies. The ovarian cyst is nothing to mess with and your doctor is right to want to check it further.
Have a note put on your chart to use a warm blanket when you get to recovery. It will help amazingly to warm you up.

I find the hard OR table and staying in one position, for me, is the hardest thing. I also have a few days trying to get the anesth drugs out of my system and can get a "flare" soreness and stiffness but after a few days it is ok again. Drink lots of liquids, take your meds, let all your doctors know this is going to happen, so no one is surprised by anything.

Then RELAX, and make sure that the anesth doctor knows all the meds you are on. Take a list to the hosp with you and one copy with whoever is staying with you, so that all that information is at hand.

Hint: I keep a list in my computer of all the meds I take. Under each doctor's name, speciality, and phone #, I have listed the medications prescribed by that doctor. I also have a list of all the meds I am allergic or have bad reactions to, and any other conditions I have. I update each doctor's files every year at the first visit each year. Even if there is no change, it is good to have it updated.
I would advise making sure that your surgeon has a copy of this as well, as one in your chart at the hospital. Then, if there is any question post op, the doctor has it all there and you don't have to remember all those things.
Sally
 

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Hello Trinity,
If you are on steroids you may need to increase the dose around the time of the op. Are you having a pre op Assessment? If so it is a good time to get all this sorted out.

I had a Laparoscopy years ago, it was no trouble-but you would be sensible to plan to take it easy for a few days when you get home.
Best Wishes,
Lola
 

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Discussion Starter · #5 ·
thank you

hello ladies

i would like to thank everyone who answered my question made me feel better.

god bless all of you

trinity
 

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I had lapropscopic gallbladder removal and did not suffer a lupus flare from the surgery. They did keep me in the hospital that night, and I wore the air compression stockings as a precaution against clotting due to having the clotting antibodies and a minor clotting episode though. Definitely discuss all your medications, and all the "facts" about how your lupus affects you at the pre-op appointment. Some medications may need to be stopped up to 2 weeks before the surgery (aspirin for example).

It's certainly possible to not suffer a flare after surgery. Hope it works out that way for you too!
 

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trinity,
It is ok, I have had surgery and did pretty good. Make sure that all doctors dealing with you know your health history and that you will need warmed blankets. This will make you more comfortable and not so cold. You can also make sure that they put several on you just after surgery this will counter the cold O.R. room. Have the nurses on the floor made aware to watch for flares for you so they can start treat at on set of the flare. I wish you luck with you surgery and let us know how you are doing please.
 
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