[Utilisada]

Hello everyone,

I have just joined this site and it looks as though it will be a great help to me.

I certainly have Lupus Pernio and although I have been treated for Psoriasis for many years, I believe it was actually Discoid Lupus.

I have just had my blood tests done and have to see my GP on Monday so that she can refer me to a Dermatologist.

I am in a VERY bad state at the moment and need to see the Consultant very quickly but does anyone know which Dermatologists in Leicestershire, or anywhere in East Midlands area, know about this condition or will they ALL know about it?

Obviously ones I have seen in the past have called it Psoriasis and I can't waste time going to the wrong one!

Sorry for rambling - hope you understand what I am asking.

Dea x

NB - Update on the Lupus Pernio mentioned above - Would you believe - the GP misread it!!!!!!!!!!!! - It turns out the biopsy I had shows Lichen Sclerosis !!!!!!! - This is a seperate condition to the Discoid Lupus (? Psoriasis?) though could well be connected in the end!

Dea x

 

[onetay]

Dea,
I am not from where you are but many here are aroung your are. I would look up clare or joan and see if they know of any derms they would advise seeing first. I wish you the best and hope you feel better soon. There use to be a place here to help find a doctor and though I did not see it when I came on today one of those two might be able to help you link up with some help.

 

[Utilisada]

Many thanks Tammy - I will go and see if I can track those two people down in the members list.

I hope there are not too many with those names.

Dea x


I have just gone through the members lists for all the Clares and Joan's but can't find any who are from this area?

Dea x

 

[Joandublin]

Hi there Dea

Welcome to the Forum

I think Tammy may have meant myself and Clare.T. As you can see I go by the screename of Joandublin. Im actually from Ireland and not the UK although there are lots of members here from the UK.

There is a Forum for finding a Lupus Doctor so Im going to move your thread there to see if other members can help. Just look at the main index page and the Forum is listed about two thirds the way down - just after Complimentary Therapies. Actually here is a direct link to the Forum in case you are having difficulty finding it

http://www.thelupussite.com/forum/forumdisplay.php?f=49

You might like to look through previous posts on that particular Forum to see if others have posted information about Dermatologists in your area. In the meantime someone might come along here who can help.

Keep checking in and I wish you the very best of luck. You sound in a bad way :sad:

Take care for now
Joan:rose:

 

[Utilisada]

Thank you Joan.

Yes - I am in a very bad way but I am sure there are MANY others far worse than me.

I just need to learn more, get to see the right person and get it 'under control'.

I am quite frightened at the moment as I know I have been given treatment for the wrong things - I have various creams, lotions and potions - some of which help very slightly but I don't know which one to put where for the best and the pain is so bad I could not bear to make it worse.

Thank you for moving my post to the correct place.

Best wishes to you and all the members of this site

Dea x

 

[LolaLola]

Hello Dea,
Welcome to the site. I am not very knowledgable from a skin point of view, except that I do realise how distressing it must be for you.
I am sure someone here will be able to point you inthe right direction. You are quite right not to want to waste time on dead ends, sounds like you have been through enough.
x Lola

 

[Utilisada]

Many thanks for your message Lola - It helps a lot.

Best wishes,

Dea x

 

[Maria Thompson]

Hi Dea,

I live in Solihull in the West Midlands if that is any good. My dermy is called Dr Adrian Heagerty and he is really good. He works at Solihull hopsital (NHS) or Sprie Parkway hospital in Solihull (private). He charges £130 for a first consultation (privately) and £85 for follow up appointments.

I really hope you get sorted soon, I have lupus discoid and it is HORRIBLE as you know.

Take care, love Maria x

 

[Utilisada]

Thank you Maria,

I was hoping to find someone in Leicester/Nottingham/Derby areas but he is certainly not too far away so I will look into it.

Many thanks for the info.

Take care yourself too,

Best wishes,

Dea x