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The Other Illinois Tammy
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Hi All,
I thought that you would all be interested in knowing What took place on March 3,2009 In the United States. I found it very impressive it came in my email so I did want to share with all my lupus friends here.

Facebook, Twitter, Bloggers, and Advocates on Capitol Hill Create the Largest Lupus Advocacy Day in LFA History



The real and virtual world came together on March 3, making the Eleventh Annual Advocacy Day the largest and most successful in LFA history. We used social media and the Internet to spread the word and encourage people to get involved. E-cards were sent to our constituents with suggestions on how they could help, and we asked them to send their own e-cards to friends and family. We asked people to change their Facebook status, post information on their blogs, and use Twitter to keep everyone updated on Advocacy Day activities. A sea of advocates covered in purple also descended on Capitol Hill delivering the same message to Members of Congress -- federal funding for lupus research must be increased.

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FY 2009 Omnibus Appropriations Act Includes Increases for Programs Advocated by the LFA

The United States Senate today passed appropriations legislation which funds much of the federal government through the end of September. The bill provides $4 million to support the National Lupus Patient Registry, as part of a broader national epidemiological study on lupus, and $1 million for a national health provider education program to improve early diagnosis and treatment of lupus and reduce health disparities. The legislation also includes nearly $1 billion more for the National Institutes of Health (NIH), the largest single source for funding for biomedical research on lupus.

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LFA Applauds President Obama's Decision Regarding Stem Cell Research

In keeping with the Foundation’s policy of supporting responsible and ethical stem cell research, the Lupus Foundation of America, Inc. applauds President Barack Obama’s decision to lift restrictions on federal funding of research on embryonic stem cell lines already in existence, as well as ones yet to be created. In addition, the LFA praises the President for issuing a Presidential Memorandum directing the head of the White House Office of Science and Technology Policy to ensure that future government decisions regarding medical research are subject to established and accepted scientific processes and made by individuals who possess appropriate scientific and academic credentials.

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Lupus Foundation of America Applauds President Obama for Creating Council on Women and Girls

The Lupus Foundation of America applauds President Obama for raising the level of national attention and focus on issues facing girls and women, by creating a White House Council on Women and Girls. The Council will be chaired by Valerie Jarrett, a senior advisor and friend to the President. According to a memo released about the Council, "The mission of the Council will be to provide a coordinated federal response to the challenges confronted by women and girls and to ensure that all Cabinet and Cabinet-level agencies consider how their policies impact women and families." Lupus is a disease that predominately affects women, and we believe this is an important step in improving the health and well-being of American girls and women.



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Put Spring in Your Step with a Walk for Lupus Now® Event Near You ... Here's What's Happening in April / May 2009

Spring is just around the corner, and you know what that means ... it's Walk for Lupus Now season here at the Lupus Foundation of America. Monies raised from Walk for Lupus Now events will support lupus research, lupus education programs, and patient and family support services.

Please share your thoughts with me about how you feel.
 

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That is really cool. It is about time Lupus is taken seriously. When is the Lupus walk do you know I would like to participate this year. I know I will probably have to travel to Washington for it because I think that is the closest to where I am from in Baltimore. But reading the articles you provided seems very promising. Thanks for letting us know about this. Laurie
 

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Tammy,

Thanks for posting this about how successful it was this year. I was going to attend but due to some issues with my mom being ill I just could not go this year. Maybe next year. Happy to know it was a decent turn out.;)
 

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The Other Illinois Tammy
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karol,
I did want you to know that they had a internet link for those that can not make the trip that was one of the reason for my posting and to share that the research for lupus will get some help finally. It was very exciting news for those of us with lupus and other auto immune diseases around the world, I think and am so pleased that you all enjoyed finding out about the information.
 
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