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Just wanted some input. I was diagnosed last July with Lupus. My rheumy started me on Plaquenil and Mobic. There had been some question with Wegener's disease also. I was sent to a nephrologist due to having blood in my urine. He concluded that I have vasculitis (possibly Wegener's) and started me on Bactrim every other day (I had issues with pneumonia in the past). My condition has greatly improved.
I now had to switch rhuematolgists due to insurance. I brought all my medical records (like a novel). After reviewing and examining me, he's not so sure it is Lupus but called it Connective Tissue Disease. His main reason was because I do not always test positive for ANA. I do, however, always test positive for P-Anca which is associated with vasculitis (I am told). He is keeping me on all my meds, for now. He also said that if I had Wegener's, I would progressively get worse. My nephrologist disagrees.
I was feeling quite good when I went to see this new doctor. He told me that based on my records, and my current state of health, he's not so sure that there is anything wrong. I spoke to my GP, who was amazed. My GP has seen me very ill the past 3 years.
Is it true that you can't have Lupus if you don't always test positive for ANA?
Feel like I'm back to square one!
Thanks!
Michelle
I now had to switch rhuematolgists due to insurance. I brought all my medical records (like a novel). After reviewing and examining me, he's not so sure it is Lupus but called it Connective Tissue Disease. His main reason was because I do not always test positive for ANA. I do, however, always test positive for P-Anca which is associated with vasculitis (I am told). He is keeping me on all my meds, for now. He also said that if I had Wegener's, I would progressively get worse. My nephrologist disagrees.
I was feeling quite good when I went to see this new doctor. He told me that based on my records, and my current state of health, he's not so sure that there is anything wrong. I spoke to my GP, who was amazed. My GP has seen me very ill the past 3 years.
Is it true that you can't have Lupus if you don't always test positive for ANA?
Feel like I'm back to square one!
Thanks!
Michelle