[louise67]

hi everyone, i am new to this site and have just introduced myself in the other section.
i am undiagnosed but sufferd a number of problems for about 10 years now. it is only after a second bout of scleritis, that my symptoms have been put together, and come up with this possibility. i am under a neurologist for epilepsy, gastroenterologist for crohns disease and a urologist for urinary problems. and now an eye specialist. my dr. is very supportive and agrees that it could be a form of lupus. he is going to refer me to a rheumatologist, but i was wondering if anyone could give me the name of a good lupus doctor. i dont mind how far i have to travel. thanks for reading. everyone is very friendly and supportive.. :newhere:
take care xxxxx

 

[LolaLola]

Dr. D' Cruz or Prof. Hughes in London are well woth the travel. Dr. D'C is NHS at St. Thomas's or Private at The London Lupus Centre. Prof. Hughes is in charge at the London Lupus Centre, private only. They are both real Gentlemen,and I have never been disappointed. From Diagnosis onward and through a dreadful Brain flare, they have never let me down.

Only problem is that NHS follow ups are pretty infrequent at Tommies. You may need to budget for a private top up if you are in need of it.
x Lola

 

[louise67]

hi lola, thankyou, im afraid there is no way i can afford private, but will certainly look into st thomas's when i get the form to choose. i really dont mind travelling any distance after waiting 10 years for this
take care xxx