Hi,
My name is Atlanta and I am 22 years old. I am the only person out of all the people I know who has SLE and myositis. So like other lupus sufferers I guess you have felt as lonely as I have at some point. I have had the problems for two years but was diagnosed about 6 months ago. The first doctor I saw tried to pass it off as depression because her lab was so crap, it didn't pick up the lupus. Went to a better place in London and they diagnosed me straight away. I was put on prednisolone and MMF. I hate the prednisolone because it has given me the worse ever skin problem, although I have not put on any weight yet. Also, are we meant to get severe mood swings with these drugs?
I feel that I would benefit from getting in touch with other people in the same situation as I feel really isolated and lonely at times and want to moan to other sufferers. My constant fear is of being labelled a hypochondriac because people without the condition sometimes struggle to understand what it is like living with this on a day to day basis.
Sorry for the essay!
My name is Atlanta and I am 22 years old. I am the only person out of all the people I know who has SLE and myositis. So like other lupus sufferers I guess you have felt as lonely as I have at some point. I have had the problems for two years but was diagnosed about 6 months ago. The first doctor I saw tried to pass it off as depression because her lab was so crap, it didn't pick up the lupus. Went to a better place in London and they diagnosed me straight away. I was put on prednisolone and MMF. I hate the prednisolone because it has given me the worse ever skin problem, although I have not put on any weight yet. Also, are we meant to get severe mood swings with these drugs?
I feel that I would benefit from getting in touch with other people in the same situation as I feel really isolated and lonely at times and want to moan to other sufferers. My constant fear is of being labelled a hypochondriac because people without the condition sometimes struggle to understand what it is like living with this on a day to day basis.
Sorry for the essay!