Joined
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7 Posts
Hi everyone...
This is my first post. My name is Lisa, and my fiance was diagnosed with Lupus approx 15 years ago, in his late teens. He has gone years between flares, although he is on several Rx medications. I've never been privy to the start of a flare, and am fairly convinced he is experiencing the begining of one right now. I'm frightened, as I do not not know what to expect.
Right now he is absolutely exhausted. He comes home from work at night and falls fast asleep. To describe this as fatigue is puting it very mildly. I have never seen him like this, as he is normally full of energy. He's also experiencing terrible headaches. This has been going on for about a week. And while he sleeps, I sit awake all night terrified of what's to come. About three years ago, after a misdiagnosed blood clot in his calf traveled to his lungs, he spent a week in ICU. He has been on blood thinners since. His Lupus has been in remission for years.
I keep stressing communication to him, but I know he is hesitant to discuss his illness with me because he doesnt want to worry me anymore than I already am. This is counter-productive. I'm not going anywhere, and can and deal with whatever comes his (our) way - so long as I understand it!
Can you shed some light on the symptoms for me? I understand there are two types of Lupus, and he has both of them.
With appreciation,
Lisa, Long Island, New York
This is my first post. My name is Lisa, and my fiance was diagnosed with Lupus approx 15 years ago, in his late teens. He has gone years between flares, although he is on several Rx medications. I've never been privy to the start of a flare, and am fairly convinced he is experiencing the begining of one right now. I'm frightened, as I do not not know what to expect.
Right now he is absolutely exhausted. He comes home from work at night and falls fast asleep. To describe this as fatigue is puting it very mildly. I have never seen him like this, as he is normally full of energy. He's also experiencing terrible headaches. This has been going on for about a week. And while he sleeps, I sit awake all night terrified of what's to come. About three years ago, after a misdiagnosed blood clot in his calf traveled to his lungs, he spent a week in ICU. He has been on blood thinners since. His Lupus has been in remission for years.
I keep stressing communication to him, but I know he is hesitant to discuss his illness with me because he doesnt want to worry me anymore than I already am. This is counter-productive. I'm not going anywhere, and can and deal with whatever comes his (our) way - so long as I understand it!
Can you shed some light on the symptoms for me? I understand there are two types of Lupus, and he has both of them.
With appreciation,
Lisa, Long Island, New York