Lupus Awareness
Hi Parkesy and other posters
your ideas sounds great especially
as you are actioning them- Good luck to you.
I am in northeast Australia and there is no awareness of lupus here. Many on site are aware that I have had to push very hard
to get to specialists far away from my city.
i followed a link from the new Hughes book, that took me to scleroderma- U.S, that took me to Scleroderma Australia, so I paid to join, and they are just setting up online.
I was sent a scleroderma book, :blush:and newsletter on joining, and there was a contact number for someone in my city. To cut a story short, I rang her, she visited me, and I had coffee with her in town last week. I'd known from a friend with Lupus that a group had not kept going, and my scleroderma contact Pat said there was no actual group, but she was aware of those affected.
So we are going to try to contact scleroderma and lupus people by phone or paper insert, just to try to have a cuppa together round Christmas. Pat is a very special
person, as she is a well person, but she has been fundraising for scleroderma for years with raffles, as it is her friend who is so affected.
I applaud anyone like you, Parkesy,
who raises Lupus awareness.
I have been in contact online since start of last year to find out about Lupus/APS etc, finding it a nono subject here. But Pat is the first person I have physically spoken to, and helps not for herself but for others. I hope that she and I might be able to build on our knowledge :wink2: and reach out to awareness
