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Hi all, a Gp believed I'd Lupus over 20 years ago when I was a student.Years went by extreme tiredness, pain continued..got shingles twice in short period of time and forever getting mouth ulcers, checked with Dentist which showed nothing to do with my teeth.Hair loss too..I asked for Lupus blood test and the Lupus blood clotting test came back positive and they want to retest in 12 weeks.Anyone else had similar experiences?
 

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Good afternoon,

Sadly your story is pretty common. I hope you are going to be properly investigated this time with a Rheumy who is well versed in autoimmune diseases. In the meantime you can start jotting things down that are making you feel bad, specific examples are good, photos are good and pain grading helps. Also noting what these symptoms are stopping you from doing etc. Don't be brave, be honest and try and find out why your body is feeling so awful.....I wish you well...Claire
 

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Let us know how you get on .... I wish you well.
 
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